Cure GM1 Foundation

Awareness -> Funding -> Hope The only 501(c)(3) entirely dedicated to GM1, Founded by families impacted by GM1 gangliosidosis, a fatal disease that primarily impacts children. The Cure GM1 Foundation is dedicated to hope and to directly funding research for a cure or treatment for GM1 gangliosidosis/GM1-gangliosidosis, a lysosomal storage disease that attacks the brain and spinal cord and is always fatal in children. GM1 is a progressive and degenerative condition with an extremely broad and debilitating array of symptoms and complications. This nonprofit organization was founded by parents of children who suffer from GM1 who seek to save the lives of all those who suffer from this wretched condition. Cure GM1 is in contact with the largest number of families impacted by GM1 of any advocacy group globally.

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473154419

EIN

2014

Founded

Albany, CA 94706 USA

Address

curegm1.org

Web

curegm1foundation

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News

30 kvě

Cure GM1 Foundation

WOW, Thank you for an amazing GM1 Awareness Month and GM1 Day! Together, we created an incredible impact, and we couldn't have done it without our incredible community. Together we are establishing GM1 as a recognized cause worthy of attention and resources. READ MORE: https://conta.cc/43B5KpJ GIVE: curegm1.org/donate #curegm1 #raredisease #hope #change #medicine #genetics #drugdevelopment #patients #give (fb)

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29 kvě

Cure GM1 Foundation

Join us in Irvine, CA or virtually! Free for GM1 families. Free Disneyland passes and travel scholarships available (some rules apply and limited quantities). The tentative agenda is now available. Thank you to all our sponsors! REGISTER TODAY: curegm1.org/conference APPLY for travel scholarship (GM1 families only): https://tinyurl.com/4dden36j #curegm1 #hope #raredisease #community #knowledge #joinus #takeaction #genetics #patients (fb)