Alpha 1 Association

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Our mission is to increase awareness of and find a cure for Alpha-1 Antitrypsin Deficiency. Facebook (Alpha-1 Foundation) & Instagram (Alpha1Foundation). Alpha-1 Antitrypsin Deficiency is a genetic condition that may result in lung and/or liver disease. The mission of the Alpha-1 Association is to identify those affected by Alpha-1 Antitrypsin Deficiency and to improve the quality of their lives through support, education, advocacy, and encourage participation in research.Β More than 745 individuals served as volunteers and the Association has touched the lives of more than 3,000 Alphas and family members through its programs and services in 2012.

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Web: Sign in to see organisation websiteFacebook: Alpha1FoundationX (Twitter): alphafriendICO: 411712790

Alpha-1 Foundation: Support & Awareness Secondary Navigation Main Navigation About Alpha1 Find an Alpha1 Support Group Near You Living with Alpha1 Alpha1 Education Alpha1 Research Join the Alpha1 Research Registry Get Involved Finding a cure for Alpha1 and improving the lives of those affected FEATURES Help Advance Alpha1 Research by Joining the Alpha1 Research Registry Attend the Omaha A1F Education Day on March 22nd Learn More About the TaxSmart Ways to Give Watch Alpha1 Educational Presentations Using Our Video Library Find an Alpha1 Specialist Browse our database to find a doctor specializing in Alpha1. Filter by location or area of expertise to narrow down your search. OUR IMPACT Weve invested over 100 million into Alpha1 research and related programs From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure no other organization does more for families with Alpha1. 100M in research funded 130 researchers funded 10X the clinical trials within a decade TOP STORIES Mutated DNA Restored to Normal in Gene Therapy Advance Exciting breakthrough in Alpha1 research by Beam Therapeutics shows success in restoring the mutated Alpha1 gene to normal.

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Alpha 1 Association

You can host an Ice Cream for Alpha-1 fundraiser at home, work, school, or even a local park. Keep it small or go big with games, raffles, and even face painting. We are here to help every step of the way.

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Peter

- What are the potential ethical implications of emerging gene therapies for conditions like Alpha-1 Antitrypsin Deficiency?

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Vera

- How can we improve community engagement and awareness for Alpha-1 Antitrypsin Deficiency in underrepresented populations?

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Alpha 1 Association

Interested in pursuing a career in Alpha-1 research. The Alpha-1 Foundation and the American Thoracic Society (ATS) have partnered to support early-career investigators starting their research careers and intend to pursue a career with AAT Deficiency. For detailed information about this grant opportunity, please visit: https://research.

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Andrew

Excited about the upcoming Omaha A1F Education Day! It's a fantastic opportunity to learn more and connect with the community. Let's keep pushing for a cure! πŸ“…βœ¨

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Alice

So inspired by the amazing work being done by the Alpha-1 Foundation! Together, we can raise awareness and make a real difference for those affected by Alpha-1 Antitrypsin Deficiency! πŸ’šπŸ™Œ

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