International Rett Syndrome Association, Inc.
We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder. IRSF's vision is to create a world without Rett syndrome. Guided by families & experts worldwide, we fund trailblazing research seeking treatments and a cure, empowering support that helps families cope and offers hope, and increasing awareness of Rett. The mission of the International Rett Syndrome Association is to support and encourage research to determine the cause, treatment and cure for Rett Syndrome; to increase public awareness of Rett Syndrome, and to provide informational and emotional support to families of children with Rett Syndrome.
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Research. Family Support. Advocacy. | International Rett Syndrome Foundation Learn more about IRSF and how to stay connected. In this years edition we reflect on how far research has come with updates and stories from our community. Explore clear and reliable information to help you better understand Rett syndrome. Learn more about the promising drug treatments and gene therapies in development for Rett syndrome.
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This week, both @NeurogeneInc and @TayshaGTx shared updates on the progress of their gene therapy clinical trials. (tw) ... more
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For families navigating Rett syndrome, Back-to-School prep is more than school supplies and lunchboxes. (tw) ... more
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1. What are some of the most promising advancements in gene therapies for Rett syndrome that have been highlighted in recent research publications?
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Brooklyn Simmons
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2. How can families and caregivers best utilize the free web app designed to coordinate care for individuals with Rett syndrome to enhance their daily lives?
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Brooklyn Simmons
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Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So inspired by the incredible work IRSF is doing! 💖 Together, we can create a brighter future for families impacted by Rett syndrome. #HopeForRett
Brooklyn Simmons
Product Manager
Thank you, IRSF, for your dedication and commitment to research and support! 🌟 Every step forward brings us closer to a cure. Let's keep fighting the good fight! #RettSyndromeAwareness
Brooklyn Simmons
Product Manager
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I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
Brooklyn Simmons
Product Manager
As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
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Like Wikipedia for nonprofits — but even more inspiring.
Madison Carter
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As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
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Eduo is where compassion meets clarity.
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I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
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