International Rett Syndrome Association, Inc.

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We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder. IRSF's vision is to create a world without Rett syndrome. Guided by families & experts worldwide, we fund trailblazing research seeking treatments and a cure, empowering support that helps families cope and offers hope, and increasing awareness of Rett. The mission of the International Rett Syndrome Association is to support and encourage research to determine the cause, treatment and cure for Rett Syndrome; to increase public awareness of Rett Syndrome, and to provide informational and emotional support to families of children with Rett Syndrome.

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Research. Family Support. Advocacy. | International Rett Syndrome Foundation Learn more about IRSF and how to stay connected. In this years edition we reflect on how far research has come with updates and stories from our community. Explore clear and reliable information to help you better understand Rett syndrome. Learn more about the promising drug treatments and gene therapies in development for Rett syndrome.

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George

1. What are some of the most promising advancements in gene therapies for Rett syndrome that have been highlighted in recent research publications?

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Michael

Thank you, IRSF, for your dedication and commitment to research and support! 🌟 Every step forward brings us closer to a cure. Let's keep fighting the good fight! #RettSyndromeAwareness

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Simone

So inspired by the incredible work IRSF is doing! đź’– Together, we can create a brighter future for families impacted by Rett syndrome. #HopeForRett

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Rachel

2. How can families and caregivers best utilize the free web app designed to coordinate care for individuals with Rett syndrome to enhance their daily lives?

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