Aplastic Anemia and MDS International Foundation
Aplastic Anemia and MDS Int'l Found supports patients & families with #aplastic anemia, #MDS, #PNH, and related bone marrow failure diseases #AML #PRCA #CMML Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH The Aplastic Anemia & MDS International Foundation empowers individuals diagnosed with aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and their support network by providing timely information, a community of support, improved treatment through health provider education, and hope for a cure through promotion of research.
Founded
1983
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Learning is Hope. Subscribe Donate Aplastic Anemia and MDS International Foundation Serving the aplastic anemia myelodysplastic disease syndromes MDS paroxysmal nocturnal hemoglobinuria PNH and related bone marrow failure disease communities AAMDSIF empowers patients and their families invests in research that speeds the search for new treatments and potential cures promotes highquality care by educating healthcare providers and ensures our patients voices are heard through awareness and advocacy. Quick Links Resources for You Patient Education Research Patient Guides Find a Specialist AAMDSIF Events and Inspiration Patient and Family Conferences 2025 Kansas City Patient and Family Conference Friday April 25 2025 530pm March for Marrow and Community Fundraisers March for Marrow Texas 2025 Saturday April 5 2025 800am Stories of Hope Gouldsmith Family Pulls Together for Gabby Heather Gouldsmith Professional Conferences 2025 AAMDSIF Bone Marrow Failure Summit Translating Science to. March 6 2025 Online Library Webinars ASH 2024 Update Aplastic Anemia and PNH February 18 2025 Podcast Episodes Pediatric Nurse Finds her Way through Aplastic Anemia Treatment AAMDSIF Podcast for Patients Conference Materials 2024 Tampa Patient and Family Conference Saturday October 19 2024 730am Research Articles Treatment of lowerrisk myelodysplastic syndromes Originally published February 1 2025 Your Support Powers Our Community With over 17 years experience supporting and advocating for patients at the Aplastic Anemia and MDS International Foundation Ive seen firsthand how important community support is when facing the challenges of a rare disease. Every contribution enables AAMDSIF to continue providing free and accessible programs that strengthen our community.
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Renee
π Grateful to the Aplastic Anemia and MDS International Foundation for the invaluable resources and support you provide! Your work empowers patients and families, bringing knowledge and strength during difficult times. Keep shining your light! #PatientAdvocacy #CureAplasticAnemia
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