
AMP22q
To provide community support and spread awareness for 22q11.2 Deletion Syndrome through fundraising, support groups, and local events. We are the only registered 501(c)3 non-profit group for 22q11.2 deletion syndrome in the Kansas City area.
22Q Deletion Syndrom, DiGeorge, VCFS, CAFS, Opiz G/BBB Syndrome, Cayler Cardiofacial syndrome, Sedlackova Syndrome, Velofacial hypoplasia. To provide community support and spread awareness for 22q11.2 Deletion Syndrome through fundraising, support groups, and local events. To help educate other families recently diagnosed with 22q11.2 Deletion Syndrome. To work with our local Children’s hospitals in gaining research and opening clinics to better provide for children with 22q11.2 Deletion Syndrome.
453695966
EIN
Blue Springs, MO 64015 USA
Address
amp22q.org
Web
amp22q
Twitter (166)
amp22q
Facebook (1300)
More from Blue Springs
Heart & Soul Npo |
|
10Th Player Foundation Inc |
|
The Summit |
|
Restore the Light |
|
Thetruthbearers Inc |
Similar social media (1466)
Great Western Council of Optometry1467 |
|
Kate B. Reynolds Charitable Trust1467 |
|
GI Connections1467 |
|
JERICHO ROAD MINISTRIES INC1467 |
|
THE IAFN FOUNDATION INC1467 |
More Specifically Named Diseases
Against Malaria Foundation (US) |
|
Menieres Resources Inc |
|
Dignity Liberia |
|
PKD Foundation |
News
Angels with Missing Pieces List https://t.co/nI7xYVKSGu (tw)

https://t.co/nspD17mm8g (tw)

Poslední diskuze
Nearby
4.5
Reviews
Blue Springs
Place
About the organization
23 Vacancy
More Detail