Angels With Missing Pieces
To provide community support and spread awareness for 22q11.2 Deletion Syndrome through fundraising, support groups, and local events. We are the only registered 501(c)3 non-profit group for 22q11.2 deletion syndrome in the Kansas City area. 22Q Deletion Syndrom, DiGeorge, VCFS, CAFS, Opiz G/BBB Syndrome, Cayler Cardiofacial syndrome, Sedlackova Syndrome, Velofacial hypoplasia. To provide community support and spread awareness for 22q11.2 Deletion Syndrome through fundraising, support groups, and local events. To help educate other families recently diagnosed with 22q11.2 Deletion Syndrome. To work with our local Children’s hospitals in gaining research and opening clinics to better provide for children with 22q11.2 Deletion Syndrome.
ICO
453695966
1300
X (Twitter)
166
Address
Blue Springs
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Specifically Named Diseases Category
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Blue Springs
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