Cloves Syndrome Community
Support, Research & Education to improve the quality of life for ppl with CLOVES. Rare, progressive disease with a + PIK3ca mutation. Tweets by @kristenpdavis CLOVES Syndrome Community - Support, Research and Education CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES syndrome.
Founded
2011
2700
X (Twitter)
1069
Address
Browns Point
Cloves Syndrome Community - Cloves Syndrome Community Cloves Syndrome Community The CLOVES Syndrome Registry CONTACT REGISTRY SUBSCRIBE TO OUR MAILING LIST Welcome to CLOVES Syndrome Community The vision of CLOVES Syndrome Community is an improved quality of life for those living with CLOVES syndrome. Our mission is to support educate empower and improve the lives of those affected by CLOVES syndrome. CLOVES Syndrome Community does this by cultivating a thriving patient community convening medical and family conferences publishing books for children funding medical research and assisting families with long term medical costs. We also bring families together for Betsys Camp an annual opportunity for community fun and relaxation.
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Cloves Syndrome Community
It's easy to forget just how many lives each and every one of us touch. In small ways, and in profound ones (and everything in between) humans thrive in an interconnected web of relationships and interactions. You're an integral part of that web—and of this community.
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Clara
2025-10-23
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