
Cloves Syndrome Community - Cloves Syndrome Community
453056921
2011
Browns Point, WA 98422 USA
clovessyndrome.org
CLOVESSyndrome
CLOVEsSyndromeCommunity
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News

30 Day Spark ends May 30! Comment and let us know how you're doing with your challenge. And if you haven't had the chance to contribute to one or more of our awesome challengers, visit https://givebutter.com/CSC_30DaySpark to see them all and cheer them on! . #CSC30DaySpark #PIK3CARelatedOvergrowthSpectrum #RareDiseaseResearch #PatientAdvocacy #CLOVESSyndrome (fb)

Have you registered for Betsy's Camp yet? Taking place July 10-13, in Greenfield, New Hampshire, Betsy's Camp & Retreat is CSC's annual getaway for people with CLOVES and their families. Whether you're into painting by the lake, or swimming in it; roasting s'mores by the fire, or sipping coffee in the early morning light, there's something for you at camp. Registration closes June 9th (or when spots fill up) so don't miss it! . #ClovesSyndrome #PIK3CA #PIK3CARelatedOvergrowthSpectrum #CLOVESirl #ClovesSyndromeCommunity #BetsysCamp2025 (fb)

Poslední diskuze
Nearby
15
4.5
Browns Point
About the organization
- 833, G99 -
Cloves Syndrome Community The CLOVES Syndrome Registry CONTACT REGISTRY SUBSCRIBE TO OUR MAILING LIST Welcome to CLOVES Syndrome Community The vision of CLOVES Syndrome Community is an improved quality of life for those living with CLOVES syndrome. Our mission is to support educate empower and improve the lives of those affected by CLOVES syndrome. CLOVES Syndrome Community does this by cultivating a thriving patient community convening medical and family conferences publishing books for children funding medical research and assisting families with long term medical costs. We also bring families together for Betsys Camp an annual opportunity for community fun and relaxation.
Diseases, Disorders, Medical Disciplines N.E.C.