Cloves Syndrome Community

Cloves Syndrome Community - Cloves Syndrome Community

Support, Research & Education to improve the quality of life for ppl with CLOVES. Rare, progressive disease with a + PIK3ca mutation. Tweets by @kristenpdavis CLOVES Syndrome Community - Support, Research and Education
453056921
EIN
2011
Founded
Browns Point, WA 98422 USA
Address
clovessyndrome.org
Web
CLOVESSyndrome
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CLOVEsSyndromeCommunity
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Cloves Syndrome Community
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Browns Point
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About the organization

- 833, G99 -

Cloves Syndrome Community The CLOVES Syndrome Registry CONTACT REGISTRY SUBSCRIBE TO OUR MAILING LIST Welcome to CLOVES Syndrome Community The vision of CLOVES Syndrome Community is an improved quality of life for those living with CLOVES syndrome. Our mission is to support educate empower and improve the lives of those affected by CLOVES syndrome. CLOVES Syndrome Community does this by cultivating a thriving patient community convening medical and family conferences publishing books for children funding medical research and assisting families with long term medical costs. We also bring families together for Betsys Camp an annual opportunity for community fun and relaxation.

Diseases, Disorders, Medical Disciplines N.E.C.
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