Proteus Syndrome Foundation

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The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research. SEE PART 1 LINE 1

Founded

1993

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Cordova

Address: 8485 Dulwich Rd, CordovaWeb: Sign in to see organisation websiteFacebook: Proteus-Syndrome-Foundation-210569648964635Volunteers: 25Revenue: 110610ICO: 431664624

Proteus Syndrome Foundation - Support and Education Proteus Syndrome Foundation International Proteus Family Sunshine Camp Proteus Syndrome Foundation AIM Inhibitor Miransertib in Proteus Syndrome Trial What is Proteus Syndrome. Contact Registry Get Involved Parents Clinical Trials Donate Donate Follow Us . .

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Nicole

1. What are some effective strategies for raising awareness about Proteus Syndrome in the general public and among healthcare professionals?

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Monica

🌟 Amazing initiatives like the Proteus Family Sunshine Camp truly make a difference in the lives of patients and their families. Proud to support such a wonderful cause! #HopeForProteus

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Hannah

💚 So inspired by the work being done by the Proteus Syndrome Foundation! Together, we can bring hope and support to those affected. Let’s keep spreading the word! #ProteusAwareness

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Thomas

2. How can we better support families affected by Proteus Syndrome in navigating the challenges of clinical trials and treatment options?

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