Forgotten Diseases Research Foundation

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THE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS. THE GOALS ARE TO IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH THESE DISORDERS AND TO IMPROVE RESEARCH PRACTICES IN THE FOLLOWING WAYS: -CREATING A SINGLE PLACE FOR DISSEMINATING INFORMATION ABOUT VERY RARE DISEASES. -HELPING PEOPLE DIAGNOSE VERY RARE DISEASES. -DISCOVERING THE MOST ROBUST SCIENTIFIC APPROACHES TO STUDYING RARE DISEASES. -DISSEMINATING INFORMATION TO FAMILIES THAT WILL HELP THEM CARE FOR SICK FAMILY MEMBERS. -EDUCATING THE PUBLIC ABOUT WHAT CAN BE LEARNED FROM THE STUDY OF RARE DISEASES. -MAKING PHYSICIANS MORE KNOWLEDGEABLE ABOUT THESE DISEASES.
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forgottendiseases.org
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Forgotten Diseases Research Foundation Welcome to the FDRF Rare Diseases Weve developed free online tools to help understand rare diseases. See the link at the top of this page for our newest tool or the Rare Diseases tab for more information. Weve also written extensive information about each disease in the tool see the Rare Diseases tab. All of our web pages for different diseases have photographs of patients Xrays and otherimages that will help a person trying to understand the condition.

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