Forgotten Diseases Research Foundation
THE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS. THE GOALS ARE TO IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH THESE DISORDERS AND TO IMPROVE RESEARCH PRACTICES IN THE FOLLOWING WAYS: -CREATING A SINGLE PLACE FOR DISSEMINATING INFORMATION ABOUT VERY RARE DISEASES. -HELPING PEOPLE DIAGNOSE VERY RARE DISEASES. -DISCOVERING THE MOST ROBUST SCIENTIFIC APPROACHES TO STUDYING RARE DISEASES. -DISSEMINATING INFORMATION TO FAMILIES THAT WILL HELP THEM CARE FOR SICK FAMILY MEMBERS. -EDUCATING THE PUBLIC ABOUT WHAT CAN BE LEARNED FROM THE STUDY OF RARE DISEASES. -MAKING PHYSICIANS MORE KNOWLEDGEABLE ABOUT THESE DISEASES.
ICO
454470463
Web
Sign in to see organisation website
Address
Santa Clara
Forgotten Diseases Research Foundation | Home Forgotten Diseases Research Foundation Welcome to the FDRF Rare Diseases Weve developed free online tools to help understand rare diseases. See the link at the top of this page for our newest tool or the Rare Diseases tab for more information. Weve also written extensive information about each disease in the tool see the Rare Diseases tab. All of our web pages for different diseases have photographs of patients Xrays and otherimages that will help a person trying to understand the condition.
From Social media
News about from their social media (Facebook and X).
Data about organisation
Santa Clara
Organisations from Forgotten Diseases Research Foundation
1. President-Board of Trustees Santa Clara College
Santa Clara University is the leading Jesuit university in Silicon Valley.
Santa Clara University is the leading Jesuit university in Silicon Valley.
Pi Kappa Alpha is dedicated to developing men of integrity, intellect, and high moral character.
Sonar Bangla Foundation (SBF) is a 501(c)(3) non-profit organization founded in 2009 in California.
Similar organisations
Similar organisations to Forgotten Diseases Research Foundation based on mission, location, activites.
We offer a variety of treatments for all manner of orthopedic ailments, including: back pain, ankle,.
Similar Organisations Worldwide
Organisations in the world similar to Forgotten Diseases Research Foundation.
ATACSIA A FI / ATAXIA AND ME (uk)
People with Ataxia have problems with speech, coordination and balance.
RARE FIND FOUNDATION LIMITED (au)
An Australian National charity for Tay-Sachs and Sandhoff diseases.
THE CHILDREN'S RARE DISORDERS FUND LTD (uk)
The Children's Rare Disorders Fund is dedicated to curing childhood rare genetic disorders.
Interesting nearby
Interesting organisations close by to residence of Forgotten Diseases Research Foundation
More Interesting nearbyJoin us and make a difference for the future!
Transparent, useful, and beautifully designed.
Janet
Eduo connects you to causes that actually matter to you.
Catherine
Eduo connects you to causes that actually matter to you.
Daniel
Eduo is where compassion meets clarity.
Paul
Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Paul
A brilliant resource for anyone who wants to do good more effectively.
Michelle
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Benjamin
2025-10-24
"On World Polio Day, let's celebrate the commitment of WHO, UNICEF, and Rotary International to eradicate polio in Ethiopia and create a healthier future for all children! #WorldPolioDay2025"
Joint Statement by WHO, UNICEF, and Rotary International | WHO | Regional Office for Africa
WHO | Regional Office for Africa
Like Comment
Vaลกek
2025-10-24
๐ถ Exciting news! The newly refurbished Sustainable Community Hub in Shipley is set to bring live music back to life with its 237-capacity venue, thanks to ยฃ3m in regeneration funding! ๐ #CommunitySpirit #LiveMusic
Refurbished venue to start hosting live music
Yahoo
Like Comment