Forgotten Diseases Research Foundation
THE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS. THE GOALS ARE TO IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH THESE DISORDERS AND TO IMPROVE RESEARCH PRACTICES IN THE FOLLOWING WAYS: -CREATING A SINGLE PLACE FOR DISSEMINATING INFORMATION ABOUT VERY RARE DISEASES. -HELPING PEOPLE DIAGNOSE VERY RARE DISEASES. -DISCOVERING THE MOST ROBUST SCIENTIFIC APPROACHES TO STUDYING RARE DISEASES. -DISSEMINATING INFORMATION TO FAMILIES THAT WILL HELP THEM CARE FOR SICK FAMILY MEMBERS. -EDUCATING THE PUBLIC ABOUT WHAT CAN BE LEARNED FROM THE STUDY OF RARE DISEASES. -MAKING PHYSICIANS MORE KNOWLEDGEABLE ABOUT THESE DISEASES.
ICO
454470463
Web
forgottendiseases.org
Address
Santa Clara
Forgotten Diseases Research Foundation | Home Forgotten Diseases Research Foundation Welcome to the FDRF Rare Diseases Weve developed free online tools to help understand rare diseases. See the link at the top of this page for our newest tool or the Rare Diseases tab for more information. Weve also written extensive information about each disease in the tool see the Rare Diseases tab. All of our web pages for different diseases have photographs of patients Xrays and otherimages that will help a person trying to understand the condition.
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Category Research Institutes and/or Public Policy Analysis
Další Research Institutes and/or Public Policy AnalysisDiscussions
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1. How can we improve awareness and understanding of rare diseases among the general public, and what role can NGOs like the Forgotten Diseases Research Foundation play in this effort?
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Brooklyn Simmons
2 days ago
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2. What innovative strategies could the Forgotten Diseases Research Foundation implement to increase funding and support for research on ataxia-telangiectasia and other rare diseases?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
Thank you for the amazing work you do, FDRF! Your resources are invaluable for families navigating rare diseases. Keep it up! 💙 #RareDiseaseAwareness

Brooklyn Simmons
Product Manager
Incredible to see such dedication to improving lives through research and education! Donating to support your mission is a no-brainer. 🙌✨ #SupportRareDiseases

Brooklyn Simmons
Product Manager
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