PROJECT ALIVE

Follow Message Edit

A Hunter syndrome research and advocacy foundation. Project Alive exists to find a cure for Hunter syndrome through research and advocacy, and provide education and resources to the Hunter syndrome community.

Founded

2014

Facebook

5600

Web

Sign in to see organisation website

Address

Spring Hill

Address: P.O. Box 3521, Spring HillWeb: Sign in to see organisation websiteFacebook: projectaliveEmployees: 2Revenue: 301636ICO: 464617970

Project Alive | A Cure Within Reach WE BELIEVE A Cure is Within Reach Project Alive was founded with the purpose of finding a cure for Hunter syndrome. This is still our primary mission but we also realize that a cure can come in many forms. That is why it is so important to continue to research and fund promising treatments. And we can never let up with our advocacy until every boy with Hunter syndrome receives the best care available and every child born with this disease can grow up.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Monica

2. How can advocacy efforts be strengthened to ensure that every boy with Hunter syndrome receives optimal care and support throughout their lives?

Like Comment
Olga

1. What innovative treatment options are currently being researched for Hunter syndrome, and how can we support their development and accessibility for affected families?

Like Comment
Ray

Absolutely inspired by the dedication of Project Alive! 🌟 Together, we can make a difference and bring hope to every boy affected by Hunter syndrome. Let’s continue to support and advocate for the families who need it most! 💙 #CureWithinReach

Like Comment
PROJECT ALIVE

From powerful stories to generous hearts and unforgettable moments, the Cure Within Reach Gala was a night of hope, community, and purpose. Together, we celebrated how far we’ve come and how close we are to the breakthroughs our families deserve. Watch the recap and see how your support is helping bring a cure within reach for those living with MPS.

Like Comment
PROJECT ALIVE

At the Cure Within Reach Gala, we proudly recognized a few extraordinary families who are helping fund the future of MPS research and care. Their generosity, advocacy, and unwavering belief in our mission are driving real change and bringing us closer to a world where a cure is not just possible but promised. To our award recipients: thank you for turning hope into action.

Like Comment
Rachel

Heartfelt thanks to Project Alive for your tireless efforts in researching and advocating for Hunter syndrome! Your work is crucial for the community, and I stand with you in the fight for a brighter future for all affected. Let’s keep pushing for that cure! 🙌✨ #HopeForHunterSyndrome

Like Comment
Collected information

Data about organisation

Specifically Named Diseases Research Category

Organisations with similar rank to PROJECT ALIVE in category Specifically Named Diseases Research

39. Fraxa Research Foundation, Inc.

FRAXA's mission is to find effective treatments and ultimately a cure for Fragile X syndrome and are likely to help people affected by autism.

40. PROJECT ALIVE

A Hunter syndrome research and advocacy foundation.

41. National Diabetes & Obesity Research Center at Tradition MS

OUR VISION is to create the Nation’s best diabetes and obesity research center.

42. FETAL HEALTH FOUNDATION

The Fetal Health Foundation's mission is to provide support, information, fund research, increase awareness and be an outlet for leading medical information pertaining to fetal syndromes.

More from Specifically Named Diseases Research

Alliance/Advocacy Organizations Category

Organisations with similar rank to PROJECT ALIVE in category Alliance/Advocacy Organizations

129. NTM Info & Research, Inc.

Information about research and health for NTM lung disease, disseminated NTM infection, and NTM-related diseases like CF, Bronchiectasis and PCD.

131. PROJECT ALIVE

A Hunter syndrome research and advocacy foundation.

132. Disability Rights Louisiana

Disability Rights Louisiana protects, empowers & advocates for the rights of people with disabilities.

133. CIRCADIAN SLEEP DISORDERS NETWORK INC

Highlights from Circadian Sleep Disorders Network, an organization raising awareness and seeking accommodations for Circadian Rhythm Sleep Disorders.

More from Alliance/Advocacy Organizations

Fund Raising and/or Fund Distribution Category

Organisations with similar rank to PROJECT ALIVE in category Fund Raising and/or Fund Distribution

76. Ocular Melanoma Foundation

OMF is a resource for eye cancer research funding and patient/caregiver support and assistance.

77. SHAY SHARPES PINK WISHES INC

We educate, advocate, support and fulfill wishes of young women and kids affected by breast cancer.

78. PROJECT ALIVE

A Hunter syndrome research and advocacy foundation.

79. MS HOPE FOR A CURE INC

Our mission is to raise money to find a cure for and support those living with Multiple Sclerosis.

80. CHC: Creating Healthier Communities

For more than 65 years, CHC has partnered to address the barriers to good health and equity.

More from Fund Raising and/or Fund Distribution

Spring Hill

Organisations from PROJECT ALIVE

24. In His Grip Ministries

BECOME A MEMBER.

25. PROJECT ALIVE

A Hunter syndrome research and advocacy foundation.

26. Jenks Ranch and Rescue

Jenks Ranch and Rescue is a 15 acre ranch, focused on giving unwanted or neglected/abused animals a second chance at a loving, peaceful life.

27. Spring Hill Education Foundation

Official account for Spring Hill Schools.

More from Spring Hill

Similar organisations

Similar organisations to PROJECT ALIVE based on mission, location, activites.

FRIENDS OF ESSENTIAL THROMBOCYTHEMIA INC

To raise funds for the rare blood cancer/bone marrow disorder known as Essential Thrombocythemia (ET.

WOBBLY FEET FOUNDATION INC

WFF promotes awareness of A-T and contributes to advancement in life improving therapies & a cure.

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to PROJECT ALIVE.

Genetic Cures For Kids Inc (au)

Please help save Tallulah Moon and all kids living with SPG56.

Sanfilippo Children's Foundation (au)

Sanfilippo Children's Foundation is a not-for-profit research group.

Sotos Syndrome Australasia Incorporated (au)

Sotos Syndrome Australasia strives to be a voice for those living with Sotos Syndrome & community.

THE CHILDREN'S RARE DISORDERS FUND LTD (uk)

The Children's Rare Disorders Fund is dedicated to curing childhood rare genetic disorders.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of PROJECT ALIVE

PROJECT ALIVE

A Hunter syndrome research and advocacy foundation.

Rocks the Cure Inc

Rocks the Cure is a non-profit organization that uses entertainment and music to raise money to help the patients and families who have been affected by this terrible disease and fund pediatric cancer research.

DIABETES PATIENT ADVOCACY COALITION

To ensure quality of and access to care, medications and devices for people living with diabetes.

More Interesting nearby

Similar social media (5600)

Organisations with similar social media impact to PROJECT ALIVE

76696. Historic Richmond Foundation

Our Mission is to shape the future of Richmond by preserving our distinctive historic character, sparking revitalization and championing our past and future architectural legacy.

76697. Greater Belleville Chamber of Commerce Inc

We are a 501c6 membership organization that supports and advances business and community interests, as well as the quality of life in Belleville and surrounding communities.

76698. PROJECT ALIVE

A Hunter syndrome research and advocacy foundation.

76699. Humanitarian China

Promote democracy and political progress in China and Hong Kong through discussion of her cultural, economic, social and political issues of concern.

76700. South Dakota Sheep Growers Association

Serving South Dakota sheep producers since 1937.

Similar social media
Join us

Join us and make a difference for the future!

As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.

Brooklyn Simmons
Kira

Eduo.org makes finding trustworthy nonprofits refreshingly simple.

Brooklyn Simmons
Michelle

The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.

Brooklyn Simmons
Brian

Eduo connects you to causes that actually matter to you.

Brooklyn Simmons
Eve

Great for discovering hidden-gem organizations near me.

Brooklyn Simmons
William

Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.

Brooklyn Simmons
Yvette
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Yvonne 2025-10-23

Think different: With or without better tools, strategists need to think bigger picture

The Drum

Like Comment
Tomáš 2025-10-23

Billionaire Bill Gates Has 79% of His $48 Billion Portfolio Invested in Just 4 Stocks | The Motley Fool

The Motley Fool

Like Comment
Miriam 2025-10-23

Kai Cenat 'Enjoying Subathon Bankroll' With GF GiGi in Italy

Mandatory

Like Comment