JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION
The Joubert Syndrome & Related Disorders Foundation supports those affected by Joubert syndrome and related disorders. https://t.co/vc5ETqmEBv The Joubert Syndrome & Related Disorders Foundation plays an important role in educating physicians a Our mission is to support those affected by Joubert Syndrome and related disorders by providing C.A.R.E. - Connection, Awareness, Research, and Education. Every other year we host a conference where physicians and families affected by Joubert Syndrome come together to learn from and connect with each other. We also provide grants to families in need and help educate families, physicians and the general public about Joubert Syndrome.
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Helping Families All Around The World - Joubert Syndrome & Related Disorders Foundation Wherever you arein your journeywe can help. Since 1992 the Joubert Syndrome Related Disorders Foundation has been helping families all around the world. We are an international network of parents who share knowledge experience and emotional support. Join our community today.
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