JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION
The Joubert Syndrome & Related Disorders Foundation supports those affected by Joubert syndrome and related disorders. https://t.co/vc5ETqmEBv The Joubert Syndrome & Related Disorders Foundation plays an important role in educating physicians a Our mission is to support those affected by Joubert Syndrome and related disorders by providing C.A.R.E. - Connection, Awareness, Research, and Education. Every other year we host a conference where physicians and families affected by Joubert Syndrome come together to learn from and connect with each other. We also provide grants to families in need and help educate families, physicians and the general public about Joubert Syndrome.
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Helping Families All Around The World - Joubert Syndrome & Related Disorders Foundation Wherever you arein your journeywe can help. Since 1992 the Joubert Syndrome Related Disorders Foundation has been helping families all around the world. We are an international network of parents who share knowledge experience and emotional support. Join our community today.
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Did you know that child programming is included in the conference fee. (tw) ... more
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Yosef Travis is a #JSRDF board member who writes content for the website and social media posts. (tw) ... more
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What are some effective strategies for increasing awareness and understanding of Joubert syndrome in medical education and training programs?
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Brooklyn Simmons
2 days ago
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How can we enhance our support network for families affected by Joubert syndrome, particularly in underserved communities?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
Amazing work, JSRDF! Your dedication to supporting families and raising awareness is truly inspiring. 💖 Together, we can make a difference!
Brooklyn Simmons
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So grateful for the community you've built! It's heartwarming to see families coming together to share experiences and learn. Keep up the fantastic work! 🌟
Brooklyn Simmons
Product Manager
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