Hope4Harper
Hope4Harper is a grassroots organization designed to provide hope to those living with CDKL5 deficiency and other seizure disorders by fostering awareness and supporting research. We share information about CDKL5, life as special needs family, life as a bereaved family, and how we keep moving forward. As the first to use industrial hemp extract (cannabidiol or CBD) for medicinal purposes, we advocate for its use, and have helped shape the public view on it's benefits, paving the way for other countries to make legislative changes with regards to CBD. We are advocates for organ donation for scientific research. We promote the immeasurable sacrifice made in the name of HOPE for those waiting for disease relief. We are comfortable being uncomfortable.
Founded
2012
Web
hope4harper.com
Address
CARROLLTON
Hope4Harper | Hope for a Cure OUR MISSION Hope4Harper is a 501c3 not for profit organization created to provide hope through research and awareness to those living with CDKL5 disorder and other related diseases. CDKL5 Research Harpers legacy carries on hope through research. Our research is symptom related and has the potential to create treatments for symptoms associated with several of the 7000 Orphan Diseases not just CDKL5. Our specific project list can be viewed on our research page.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Similar organisations
Non-profit that supports collaborative research to find treatments/cures for neurological disorders.
BARROW NEUROLOGICAL FOUNDATION
We provide philanthropic support to Barrow Neurological Institute.
Similar Organisations Worldwide
HOPE for Epilepsy is a charity dedicated to supporting and connecting families with children that have been affected by Epilepsy living anywhere in the UK.
We are the 1st UK charity focused on funding a cure for BPAN, supporting affected families & creating as much awareness as we can about this devestating disease.
CDKL5 is a rare x-linked disorder, resulting in early onset refractory epilepsy and severe neuro-developmental impairment.
More from CARROLLTON
PHI CHI THETA Official Facebook Page - PCT National Office Phi Chi Theta Professional Business and Economics Fraternity.
Our Focus is on the Empowerment of transgender women and girls.
ROTARY CLUB OF CARROLLTON FARMERS BRANCH
Carrollton-Farmers Branch Rotary meets every Thursday, 11:45 AM to 1:00 PM at Brookhaven Country Club, Farmers Branch, TX.
BASSET RESCUE ACROSS TEXAS INC
We are a non-profit organization staffed solely by volunteers devoted to the rescue of unwanted, abused, and homeless, basset hounds in the Dallas, Texas area and surrounding regions.
“Link Forever Those Who Served Together" The FRA is dedicated to serve & support all US Recon Marines, MARSOC Raiders, & Navy SARCs past & present.
Category
Camo to College is a nonprofit working to provide a Veteran Transition program to improve success after service while benefiting from the camaraderie of fellow vets.
Discussions
Odpovědí v diskuzi
1
1. How can we better raise awareness about CDKL5 disorder and the importance of supporting research for orphan diseases?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What role do you believe CBD can play in the treatment and management of CDKL5 and similar disorders?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Your dedication to research and awareness for CDKL5 and other orphan diseases is truly inspiring! Together, we can make a difference and bring hope to so many families. 💖🌟
Brooklyn Simmons
Product Manager
Thank you for everything you do, Hope4Harper! Your work not only honors Harper's memory but also brings hope to countless others facing similar battles. Let's keep advocating for change and awareness! 🙌💚
Brooklyn Simmons
Product Manager
Share your comment / review / opinion
Kendall Monroe
Product Manager
Join us and make a difference for the future!
Eduo.org makes finding trustworthy nonprofits refreshingly simple.
Brooklyn Simmons
Product Manager
I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
Kendall Monroe
Product Manager
Finally, a clear and organized way to explore local and global charities.
Madison Carter
Product Manager
Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Riley Bennett
Product Manager
Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Sydney Parker
Product Manager
Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Jordan Blake
Product Manager
Eduo.org makes finding trustworthy nonprofits refreshingly simple.
Brooklyn Simmons
Product Manager
Like Wikipedia for nonprofits — but even more inspiring.
Kendall Monroe
Product Manager
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with Google