Hope4Harper is a grassroots organization designed to provide hope to those living with CDKL5 deficiency and other seizure disorders by fostering awareness and supporting research. We share information about CDKL5, life as special needs family, life as a bereaved family, and how we keep moving forward. As the first to use industrial hemp extract (cannabidiol or CBD) for medicinal purposes, we advocate for its use, and have helped shape the public view on it's benefits, paving the way for other countries to make legislative changes with regards to CBD. We are advocates for organ donation for scientific research. We promote the immeasurable sacrifice made in the name of HOPE for those waiting for disease relief. We are comfortable being uncomfortable.