PCDH19 Alliance

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Our mission is to improve the lives of children and families who are affected by PCDH19 Epilepsy. Our mission is to improve the lives of children and families affected by PCDH19 Epilepsy. The PCDH19 Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure. We’re also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without a diagnosis & the best medical treatment.

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Address: 926 A #212 Diablo Avenue, NovatoWeb: Sign in to see organisation websiteFacebook: Pcdh19Revenue: 42496ICO: 454020102

PCDH19 Alliance | Support and Awareness for PCDH19 Epilepsy About PCDH19 Epilepsy Who We Are Research Resources Get Involved More Welcome Our mission is to improve the lives of children and families affected byPCDH19 Epilepsy. The PCDH19 Alliance focuses on raising and directing funds to scientific research with the goal of finding better more effective treatments and ultimatelya cure. Were also here to provide information and support to affected families assist research efforts andensure that no family suffers without a diagnosis the best medical treatment. Help us carry out our mission to find a cure better treatments and support families.

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Stella

So inspired by the incredible work the PCDH19 Alliance is doing! Together, we can raise awareness and support families affected by PCDH19 Epilepsy. 💜 #FindACure

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PCDH19 Alliance

PCDH19 Clustering Epilepsy is a rare disease. Today we recognize everyone living with PCDH19 and all of the 300 million people who need better treatments and cures. The Alliance will continue to fund critical PCDH19 research to find better treatments and eventually a cure.

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Luke

Let’s rally together and shine a light on PCDH19 Epilepsy! Every little contribution can make a big difference in the lives of these children and their families. 🙌❤️ #PCDH19Alliance

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PCDH19 Alliance

Reminder: We are accepting applications. We encourage basic and clinical researchers focused on PCDH19, epilepsy, autism, or mental health conditions such as anxiety, bipolar disorder, and schizophrenia to apply. This grant is an opportunity to advance research and uncover new pathways for treatment, bringing hope to families affected by PCDH19.

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Andrea

What innovative fundraising strategies have other NGOs successfully implemented to support rare disease research, and how can we adapt them for the PCDH19 Alliance?

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Adam

How can we enhance our support network for families affected by PCDH19 Epilepsy to ensure they have access to the resources and information they need?

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