FMD Chat
501c3 organization for those affected by fibromuscular dysplasia—FMD Chat connects patients, family members & providers via social media. #FMDaware #raredisease After nearly 10 years, FMD Chat officially ceased operations on May, 18, 2022 by unanimous board approval. The Corporation is organized and shall at all times be operatedexclusively for educational, scientific and charitable purpose. The purposes and activities of theCorporation shall be limited so that it will at all times qualify as an exempt educational andcharitable organization under Section 501(c)(3) of the Code and Sections 105-125 and 105-130.11 of the North Carolina General Statutes, or corresponding provisions of future revenuelaws and shall include:1. to support individuals with and families of patients with fibromuscular dysplasia(FMD), a rare disease, and its associated connective tissue disease diagnoses;2. to participate in the education of FMD patients, healthcare professional, policymakers, and the general public regarding FMD;3. to partner with healthcare professionals, faculty and others to conduct or supportresearch in FMD; and4. to pursue such other charitable activities so as to educate and support FMD patients and their families worldwide.
ICO
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996
Address
Charlotte
FMD Chat - Fibromuscular Dysplasia Support Traduire Traducir Verdolmetschen Natumaczy Tulkot FMD Chat Officially Ceases Operations After nearly 10 years as an organization FMD Chat officially ceased operations on May 18 2022 by unanimous board approval. The organization had unofficially discontinued in 2017 when founder and President Sarah Kucharski was forced to step back from patient advocacy due to personal health matters. Although Kucharski hoped to perhaps one day return to her advocacy and leadership roles she suffered a severe stroke during surgery to repair a brain aneurysm in March 2019. It has now been just more than three years since my stroke and unfortunately my recovery is not such that I can be an effective leader for FMD Chat Kucharski said.
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From Social media
News about FMD Chat from their social media (Facebook and X).
- FMD Chat
- 2019-04-09
Coordination of Rare Diseases at Sanford (CoRDS) is a centralized international patient registry that collects data to help advance research into rare diseases. (tw) ... more
Liked (0) Commented (0)- FMD Chat
- 2019-03-09
Coordination of Rare Diseases at Sanford (CoRDS) is a centralized international patient registry that collects data to help advance research into rare diseases. (tw) ... more
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- What lessons can other NGOs learn from the challenges faced by FMD Chat during its operation and eventual dissolution?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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- How can the community continue to support FMD awareness and research initiatives now that FMD Chat has ceased operations?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
Thank you, FMD Chat, for all the support you provided over the years. Your dedication to raising awareness and connecting those affected by fibromuscular dysplasia has truly made a difference! ❤️ #FMDaware
Brooklyn Simmons
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While it’s sad to see FMD Chat come to an end, I’m grateful for the community it built and the funds dedicated to furthering research. Let’s keep spreading awareness and supporting each other! 🌍💪 #raredisease #FMDaware
Brooklyn Simmons
Product Manager
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