
FMD Chat - Fibromuscular Dysplasia Support
460542026
Charlotte, NC 28205 USA
fmdchat.blogspot.com
FMDChat
FMDChat
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News
Coordination of Rare Diseases at Sanford (CoRDS) is a centralized international patient registry that collects data to help advance research into rare diseases. https://t.co/zdh3OMorZ8 (tw)
Coordination of Rare Diseases at Sanford (CoRDS) is a centralized international patient registry that collects data to help advance research into rare diseases. https://t.co/zdh3OMorZ8 (tw)

Poslední diskuze
Nearby
4.5
Charlotte
About the organization
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Traduire Traducir Verdolmetschen Natumaczy Tulkot FMD Chat Officially Ceases Operations After nearly 10 years as an organization FMD Chat officially ceased operations on May 18 2022 by unanimous board approval. The organization had unofficially discontinued in 2017 when founder and President Sarah Kucharski was forced to step back from patient advocacy due to personal health matters. Although Kucharski hoped to perhaps one day return to her advocacy and leadership roles she suffered a severe stroke during surgery to repair a brain aneurysm in March 2019. It has now been just more than three years since my stroke and unfortunately my recovery is not such that I can be an effective leader for FMD Chat Kucharski said.