The Sumaira Foundation

Follow Message Edit

Raising global awareness of #NMOSD & #MOGAD, building community, supporting research, advocating for rare disease patients/caregivers. Illuminating the darkness of NMOSD & MOGAD The Sumaira Foundation is a 501(c)(3) organization dedicated to generating global awareness of NMOSD and MOGAD, building communities of support for patients and their caregivers, supporting research and patient advocacy.

Founded

2014

Facebook

4100

X (Twitter)

1252

Traffic

4136319

Address: 290 Revolution Dr Apt 763, SomervilleWeb: Sign in to see organisation websiteFacebook: TheSumairaFoundationX (Twitter): TheSumairaFDNVolunteers: 65Revenue: 1759652ICO: 472398246

NMOSD & MOGAD | Sumaira Foundation The Sumaira Foundation is a 501c3 organization dedicated to generating global awareness of NMOSD and MOGAD building communities of support for patients and their caregivers supporting research and patient advocacy NMOSD Neuromyelitis optica spectrum disorder NMOSD is a rare neuroimmune condition in which the immune system attacks cells in the central nervous system CNS mistaking them for foreign invaders. Common symptoms include vision loss color vision deficiency paralysis paraparesis weakness numbness spasticity vomiting hiccups and bladderbowel dysfunction. MOGAD Myelin oligodendrocyte glycoprotein antibodyassociated disease MOGAD is a rare neuroimmune condition that targets the MOG protein which is located on the surface of myelin sheaths in the central nervous system. Common symptoms include vision loss color vision deficiency paralysis paraparesis weakness numbness spasticity vomiting hiccups seizures and bladderbowel dysfunction.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Renee

πŸ’™ So proud to support The Sumaira Foundation! Together, we can raise awareness and provide the love and community that NMOSD & MOGAD patients and caregivers need. Let's shine a light on rare diseases! #NMOSD #MOGAD

Like Comment
Sylvia

🌍✨ Every little effort counts! Let’s join hands to spread awareness about NMOSD and MOGAD. Together, we can make a difference in the lives of those affected. Keep advocating and supporting each other! #RareDiseaseAwareness #SumairaFoundation

Like Comment
Victor

- What strategies can NGOs implement to effectively raise awareness about rare diseases like NMOSD and MOGAD in underserved communities?

Like Comment
Isabel

- How can we enhance collaboration between researchers and patient advocacy groups to accelerate progress in treatments for conditions like NMOSD and MOGAD?

Like Comment
Collected information

Data about organisation

Public Foundations Category

Organisations with similar rank to The Sumaira Foundation in category Public Foundations

382. EXPECT MIRACLES FOUNDATION

Investing in cancer research & providing financial assistance for young adult cancer survivors.

383. LOUISIANA HOSPITALITY FOUNDATION

Louisiana Hospitality Foundation is a 501(c)3 organization whose mission is to strengthen Louisiana's hospitality industry through support of individuals within the community.

384. The Sumaira Foundation

Illuminating the darkness of NMOSD & MOGAD.

385. Baldwin-Whitehall Educational Foundation

The official Facebook page for the Baldwin-Whitehall School District.

More from Public Foundations

Fund Raising and/or Fund Distribution Category

Organisations with similar rank to The Sumaira Foundation in category Fund Raising and/or Fund Distribution

79. MS HOPE FOR A CURE INC

Our mission is to raise money to find a cure for and support those living with Multiple Sclerosis.

80. CHC: Creating Healthier Communities

For more than 65 years, CHC has partnered to address the barriers to good health and equity.

81. The Sumaira Foundation

Illuminating the darkness of NMOSD & MOGAD.

82. Southeast Police Motorcycle Rodeo Committee I Inc

The Safety Trials is an annual police motorcycle skills event that benefits the Concerns of Police Su.

83. Coalition Duchenne

Our mission is to raise global awareness for Duchenne muscular dystrophy, to fund research and find a cure.

More from Fund Raising and/or Fund Distribution

Fund Raising and/or Fund Distribution Category

Organisations with similar rank to The Sumaira Foundation in category Fund Raising and/or Fund Distribution

88. Mesothelioma Applied Research Foundation, Inc.

Nonprofit organization dedicated to mesothelioma research, education, support, and advocacy.

89. Connor B Judge Foundation

Illuminating the darkness of NMOSD & MOGAD.

90. The Sumaira Foundation

Illuminating the darkness of NMOSD & MOGAD.

91. RUBI GIRLS INC

We specialize in producing beautiful WordPress themes which provide our customers with a streamlined website creation experience.

92. Cystinosis Research Foundation

CRF's mission is to support bench, clinical and translational cystinosis research to find better tre.

More from Fund Raising and/or Fund Distribution

Somerville

Organisations from The Sumaira Foundation

28. JITEGEMEE

Jitegemee is a NGO based in Machakos-Kenya that supports vulnerable children to access education.

29. Somerville Community Access Television Inc.

Diverse voices unite at Somerville Media Center to create, share, and learn together through community-driven media.

30. The Sumaira Foundation

Illuminating the darkness of NMOSD & MOGAD.

32. Groundwork Somerville Inc

Making a cleaner, greener, healthier, more equitable Somerville.

More from Somerville

Similar organisations

Similar organisations to The Sumaira Foundation based on mission, location, activites.

The Iga Nephropathy Foundation of America Inc

We will work together with the hope of finding better treatment options and the ultimate cure.

The Glaucoma Foundation

The Glaucoma Foundation is dedicated to improving the lives of people with glaucoma.

AMERICAN MACULAR DEGENERATION FOUNDATION INC

AMDF is devoted to combating Age-Related Macular Degeneration (AMD) through research and education.

HOPE IN FOCUS INC

Transforming the lives of those affected by blindness from inherited retinal disease.

CURE MULTIPLE SCLEROSIS FOUNDATION OF NEW YORK INC

We support complimentary and holistic treatments for Multiple Sclerosis.

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to The Sumaira Foundation.

Moyamoya Australia (au)

Moyamoya Australia is a group of Australians who are living, surviving with this rare disease.

The Mnd And Me Foundation Limited (au)

The MND and Me Foundation supports people and their families living with Motor Neurone Disease (MND) .

NYSTAGMUS NETWORK (uk)

Registered charity in England and Wales, number 1180450.

Me/Cfs Australia Ltd (au)

ME/CFS Australia Ltd is the national body for advocacy, information and support for people with ME.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of The Sumaira Foundation

BOSTON BRUINS CHARITABLE FOUNDATION INC

Official Facebook page of the Boston Bruins.

RACE Cancer Foundation

http://racecancer.

The Sumaira Foundation

Illuminating the darkness of NMOSD & MOGAD.

More Interesting nearby

Similar social media (5352)

Organisations with similar social media impact to The Sumaira Foundation

78518. PARDADA PARDADI EDUCATIONAL SOCIETY INC

Creating a lifetime of Smiles.

78519. Ayuda

Helping immigrants access justice, heal from trauma, and overcome language isolation since 1973.

78520. The Sumaira Foundation

Illuminating the darkness of NMOSD & MOGAD.

78521. Connor B Judge Foundation

Illuminating the darkness of NMOSD & MOGAD.

78522. Great Northeast Athletic Conference Inc

Founded in 1995, the GNAC is comprised of 13 NCAA Division III Institutions, priding itself on the philosophy of Community, Integrity and Sportsmanship.

Similar social media

Similar traffic

Organisations with similar web traffic to The Sumaira Foundation

13596. Floriani

We're going to revitalize sacred music in America.

13597. American Society for Public Administration

ABFM aims to promote the professional development of budgeting and financial management in the public and non-profit sectors.

13598. The Sumaira Foundation

Illuminating the darkness of NMOSD & MOGAD.

13599. CAP Services, Inc.

CAP Services is a non-profit community development organization.

13600. BROWNSVILLE CHAMBER OF COMMERCE

The Brownsville Chamber of Commerce is a member driven business organization whose principal mission is to advance the business interests of its members.

Similar traffic
Join us

Join us and make a difference for the future!

What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda β€” just provides tools for people to explore and support what matters to them.

Brooklyn Simmons
Paul

Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.

Brooklyn Simmons
Yvette

The idea behind Eduo is genius β€” let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.

Brooklyn Simmons
Paul

Eduo is where compassion meets clarity.

Brooklyn Simmons
Jessica

Eduo connects you to causes that actually matter to you.

Brooklyn Simmons
Barbara

As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.

Brooklyn Simmons
Jessica
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Dana 2025-10-24

β˜•οΈ Exciting news from CT! A new cafΓ©, Silk City Coffee, is opening its doors with a mission to create a welcoming "third place" for everyone. πŸŽ‰ Tammy Gerhard aims to build a community hub filled with good vibes, delicious coffee, and meaningful conversations. Let's support this amazing initiative! 🌟 #GoodNews #CommunityFirst #SilkCityCoffee

New cafe in CT wants people to love coffee, people and food. The brand is on a 'world's best list'

Hartfort Courant

Like Comment
Margaret 2025-10-24

Great news in cancer treatment! πŸŽ‰ GSK's Blenrep has received FDA approval for use alongside bortezomib and dexamethasone to help adults with multiple myeloma. This is a significant step forward in providing better options for patients! πŸ’ͺπŸ’– #HealthCare #CancerAwareness

GSK's Blenrep gains FDA approval for myeloma treatment

Yahoo

Like Comment
Laura 2025-10-24

exciting news for athletes and sports enthusiasts! 🌍⚽️ With Nike's new Aero-FIT tech, we’re stepping into a future where performance meets sustainability! Can’t wait to see it in action at the 2026 FIFA World Cup! #Innovation #SportForGood #NikeAeroFIT

Nike's New Aero-FIT Apparel Is A Tech Play For A Warmer World

Forbes

Like Comment