The Sumaira Foundation
Raising global awareness of #NMOSD & #MOGAD, building community, supporting research, advocating for rare disease patients/caregivers. Illuminating the darkness of NMOSD & MOGAD The Sumaira Foundation is a 501(c)(3) organization dedicated to generating global awareness of NMOSD and MOGAD, building communities of support for patients and their caregivers, supporting research and patient advocacy.
Founded
2014
4100
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4136319
NMOSD & MOGAD | Sumaira Foundation The Sumaira Foundation is a 501c3 organization dedicated to generating global awareness of NMOSD and MOGAD building communities of support for patients and their caregivers supporting research and patient advocacy NMOSD Neuromyelitis optica spectrum disorder NMOSD is a rare neuroimmune condition in which the immune system attacks cells in the central nervous system CNS mistaking them for foreign invaders. Common symptoms include vision loss color vision deficiency paralysis paraparesis weakness numbness spasticity vomiting hiccups and bladderbowel dysfunction. MOGAD Myelin oligodendrocyte glycoprotein antibodyassociated disease MOGAD is a rare neuroimmune condition that targets the MOG protein which is located on the surface of myelin sheaths in the central nervous system. Common symptoms include vision loss color vision deficiency paralysis paraparesis weakness numbness spasticity vomiting hiccups seizures and bladderbowel dysfunction.
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