The Sumaira Foundation

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Raising global awareness of #NMOSD & #MOGAD, building community, supporting research, advocating for rare disease patients/caregivers. Illuminating the darkness of NMOSD & MOGAD The Sumaira Foundation is a 501(c)(3) organization dedicated to generating global awareness of NMOSD and MOGAD, building communities of support for patients and their caregivers, supporting research and patient advocacy.

Founded

2014

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Address: 290 Revolution Dr Apt 763, SomervilleWeb: Sign in to see organisation websiteFacebook: TheSumairaFoundationX (Twitter): TheSumairaFDNVolunteers: 65Revenue: 1759652ICO: 472398246

NMOSD & MOGAD | Sumaira Foundation The Sumaira Foundation is a 501c3 organization dedicated to generating global awareness of NMOSD and MOGAD building communities of support for patients and their caregivers supporting research and patient advocacy NMOSD Neuromyelitis optica spectrum disorder NMOSD is a rare neuroimmune condition in which the immune system attacks cells in the central nervous system CNS mistaking them for foreign invaders. Common symptoms include vision loss color vision deficiency paralysis paraparesis weakness numbness spasticity vomiting hiccups and bladderbowel dysfunction. MOGAD Myelin oligodendrocyte glycoprotein antibodyassociated disease MOGAD is a rare neuroimmune condition that targets the MOG protein which is located on the surface of myelin sheaths in the central nervous system. Common symptoms include vision loss color vision deficiency paralysis paraparesis weakness numbness spasticity vomiting hiccups seizures and bladderbowel dysfunction.

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Sylvia

🌍✨ Every little effort counts! Let’s join hands to spread awareness about NMOSD and MOGAD. Together, we can make a difference in the lives of those affected. Keep advocating and supporting each other! #RareDiseaseAwareness #SumairaFoundation

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Renee

πŸ’™ So proud to support The Sumaira Foundation! Together, we can raise awareness and provide the love and community that NMOSD & MOGAD patients and caregivers need. Let's shine a light on rare diseases! #NMOSD #MOGAD

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Victor

- What strategies can NGOs implement to effectively raise awareness about rare diseases like NMOSD and MOGAD in underserved communities?

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Isabel

- How can we enhance collaboration between researchers and patient advocacy groups to accelerate progress in treatments for conditions like NMOSD and MOGAD?

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