Down With Dystonia

Follow Message Edit

Our Mission Down with Dystonia strives to support, educate, and empower people living with dystonia and their families while raising awareness about this third most common movement disorder. Vision Our vision is a future where dystonia is recognized and diagnosed early, and where successful treatments are found so that the condition does not limit the potential of any individual. Until that vision is realized, we will be here to provide resources, encouragement, and to push constantly for further research and options.R

ICO

461319824

Facebook

0

Web

Sign in to see organisation website

Address

KENWOOD

Address: PO BOX 1126, KENWOODWeb: Sign in to see organisation websiteICO: 461319824

Down With Dystonia - We are here to support, educate, and empower EDUCATION The Disorder Dystonia is a neurological movement disorder that causes muscles in the body to contract or spasm involuntarily. The involuntary muscle contractions cause twisting repetitive and patterned movements as well as abnormal postures. Dystonia is not a single disease but a syndrome a set of symptoms that cannot be attributed to a single cause but share common elements. Some forms of dystonia may affect a specific body area such as the neck face jaw eyes limbs or vocal cords.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Alice

πŸ’œ It's incredible to see organizations like Down With Dystonia shining a light on such an important issue! Together, we can raise awareness and support those affected by this disorder. Keep up the amazing work! πŸ’ͺ #DownWithDystonia

Like Comment
Cathy

How can we leverage social media to create a more supportive community for individuals affected by dystonia and their families?

Like Comment
Andrew

✨ Dystonia needs more recognition! Thank you, Down With Dystonia, for your dedication to educating and empowering individuals and families. Let's spread the word and advocate for better treatments! 🌟 #DystoniaAwareness

Like Comment
Janet

What innovative strategies can NGOs implement to effectively raise awareness about dystonia in communities that have limited access to healthcare information?

Like Comment
Collected information

Data about organisation

KENWOOD

Organisations from Down With Dystonia

2. Court Appointed Special Advocates of Sonoma County, Inc.

The Sonoma CASA program is committed to serving the abused and neglected children in Sonoma County who come before the Juvenile Court for protection.

3. Kenwood Firemens Association

Supporting Kenwood Fire District and community.

4. Friends of Trione-Annadel State Park

Friends of Trione-Annadel works within Sonoma County to finance development and maintenance projects within the park to enhance the value and accessibility of the park to all citizens.

5. Kenwood Educational Foundation

Kenwood Education Foundation (KEF) provides financial support for Kenwood Elementary School.

More from KENWOOD

Similar organisations

Similar organisations to Down With Dystonia based on mission, location, activites.

NeuroSpring

NeuroSpring is the neuroscience research & development organization that enables healthcare breakthr.

PD Active

PD Active is a non-profit organization founded by people with PD to help build the PD community and live well.

HSAN1E Society

HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

BRAIN SUPPORT NETWORK

Nonprofit dedicated to brain donation for many neurological disorders, including Parkinson's Disease, Lewy Body Dementia, Frontotemporal Dementia, etc.

OUTRIDE

Outride is a nonprofit organization dedicated to improving the lives of youth through cycling.

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to Down With Dystonia.

MYOTONIC DYSTROPHY SUPPORT GROUP (uk)

To offer assistance, support and information to those people affected by Myotonic Dystrophy, their carers and families.

MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND (uk)

We’re here for everyone living with and affected by muscle wasting and weakening conditions.

DYSPRAXIA EDUCATION (uk)

A big hearted charity for children, and young people living with dyspraxia /Developmental Co-ordination Disorder.

THE DYSTONIA SOCIETY (uk)

The National Charity for all those with Dystonia.

DYSTONIA MEDICAL RESEARCH FOUNDATION (CANADA) (ca)

Dystonia Medical Research Foundation Canada.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of Down With Dystonia

NeuroSpring

NeuroSpring is the neuroscience research & development organization that enables healthcare breakthr.

Brain Trauma Foundation, Inc.

For over 30 years, Brain Trauma Foundation has conducted innovative clinical research and developed evidence-based guidelines that improve TBI outcomes.

PD Active

PD Active is a non-profit organization founded by people with PD to help build the PD community and live well.

BRAIN SUPPORT NETWORK

Nonprofit dedicated to brain donation for many neurological disorders, including Parkinson's Disease, Lewy Body Dementia, Frontotemporal Dementia, etc.

PCDH19 Alliance

Our mission is to improve the lives of children and families who are affected by PCDH19 Epilepsy.

More Interesting nearby
Join us

Join us and make a difference for the future!

Like Wikipedia for nonprofits β€” but even more inspiring.

Brooklyn Simmons
Paul

As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.

Brooklyn Simmons
Paul

As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds β€” written by the people, for the people.

Brooklyn Simmons
Michelle

Finally, a clear and organized way to explore local and global charities.

Brooklyn Simmons
Daniel

A brilliant resource for anyone who wants to do good more effectively.

Brooklyn Simmons
Barbara

As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.

Brooklyn Simmons
Paul
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Hanka 2025-10-23

πŸŽ‰πŸ₯³ Cheers to Lutheran Hospice for 30 amazing years of compassionate care for those in their final stages! Their dedication in the Upstate and Midlands communities truly makes a difference. Here's to many more years of service and support! πŸ’– #GoodNews #CommunityCare #LutheranHospice

Break out the bubbly: Lutheran Hospice celebrates 30 years

Post and Courier

Like Comment
Victor 2025-10-23

"Exciting news from South Dallas! πŸŽ‰ Nearly $7M in Wells Fargo grants will boost affordable housing and create jobs, all while breathing new life into the historic Forest Theater. πŸ’ͺ❀️ #CommunitySupport #GoodNews"

South Dallas leaders, nonprofits celebrate nearly $7m in Wells Fargo funding at Ruthie's

The Dallas Morning News

Like Comment
Michelle 2025-10-23

Iridium: SpaceX-EchoStar Spectrum Deal Will Be 'Disruptive,' Force a Pivot

PC Mag Middle East

Like Comment