Cure LBSL
LBSL is a degenerative brain/spinal cord disease. There is no cure but there is lots of hope. / a.k.a. #TheAwesomeDisease Cure LBSL, formerly known as A Cure for Ellie, is on a mission to support patients, raise awareness and find a cure for leukoencephalopathy with brainstem and spinal cord involvement and lactate elevation (LBSL). “A Cure for Ellie” is a registered non-profit organization dedicated to raising awareness and funds for research into LBSL, a progressive and very rare genetic disorder that affects the brain and spinal cord; most often developing in children, affecting their ability to walk, then even to stand and coordinate fine and gross motor skills. We also provide information and support to families and individuals living with the disease.
Founded
2013
1900
X (Twitter)
500
Address
ARLINGTON
Cure LBSL Calling all LBSL patient and families. The LBSL externallyled PFDD meeting will be held on Friday Aug. 1 in Washington D. C.
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Neurology, Neuroscience Category
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Cure LBSL, formerly known as A Cure for Ellie, is on a mission to support patients, raise awareness and find a cure for leukoencephalopathy with brainstem and spinal cord involvement and lactate elevation (LBSL).
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