Parry Romberg Foundation Inc

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Prevail over Parry Romberg Syndrome

ICO

612004567

Facebook

22

X (Twitter)

4

Address

Hawleyville

Address: PO Box 725, HawleyvilleWeb: Sign in to see organisation websiteFacebook: parryrombergfoundationX (Twitter): prs_foundationICO: 612004567

The Parry Romberg Foundation | Knowledge Support Resources No child should learn that half their face is victim to a rare disorder without a known cause treatment or cure. Learn More Find a Physician Get Involved Welcome Welcome to The Parry Romberg Foundation Website. Our website is dedicated to supporting patients and their loved ones coping with Parry Romberg Syndrome by providing knowledge support and resources as well as opportunities for fundraising and research. Our Foundation is committed to prevailing over this rare and lifealtering syndrome and improving the lives of those affected.

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Mark

2. How can we better connect individuals affected by Parry Romberg Syndrome with medical professionals and researchers to enhance understanding and encourage more collaborative research efforts?

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Mark

1. What innovative fundraising strategies have been most effective in raising awareness and support for rare diseases like Parry Romberg Syndrome, and how can we implement them for our foundation?

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Catherine

Just learned about Parry Romberg Syndrome and the amazing support from your foundation. It's inspiring to see how you are making a difference for families! Count me in for any upcoming events! 🌟

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Alan

❀️ Thank you, Parry Romberg Foundation, for the incredible work you do! Together, we can raise awareness and bring hope to those affected by this rare syndrome. Let’s keep fighting for a cure! πŸ’ͺ

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