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Knowledge Support Resources No child should learn that half their face is victim to a rare disorder without a known cause treatment or cure. Learn More Find a Physician Get Involved Welcome Welcome to The Parry Romberg Foundation Website. Our website is dedicated to supporting patients and their loved ones coping with Parry Romberg Syndrome by providing knowledge support and resources as well as opportunities for fundraising and research. Our Foundation is committed to prevailing over this rare and lifealtering syndrome and improving the lives of those affected.