JACKSON PROJECT
Non-Profit raising awareness about #Krabbe, supporting affected families and helping fund research. #NewbornScreening #Leukodystrophy We aim to raise awareness about Krabbe Disease and other Leukodystrophies, provide support for families, and advocate for expanded newborn screening. The Jackson Project is dedicated to improving the quality of life for families affected by Leukodystrophy. The foundation accomplishes this by financially supporting families in obtaining the equipment or services they need to best care for those affected, raising awareness about Leukodystrophies and the critical role of newborn screening, and partnering with the Leukodystrophy Care Network to advance standards of care and specialized centers of excellence.
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465069894
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Roanoke
Krabbe Disease Non-Profit Foundation: The Jackson Project The Jackson Project Home Meet Jackson Krabbe Family Support Research Events Contact Us Welcome to The Jackson Project The Jackson Project is a 100 volunteer run 501c3 public charityformed in the State of Texas in 2014. The organization is formed in honor ofJackson Wallace affectionately known as JBird who fought a fatal form of Leukodystrophy called Krabbe Disease. The foundation is dedicated to improving the quality of life for families affected by Leukodystrophy by Financially supporting families in obtaining equipment or services they need to best care for those affected. Raising awareness about Krabbe other Leukodystrophies and the critical role of Newborn Screening.
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From Social media
News about JACKSON PROJECT from their social media (Facebook and X).
- JACKSON PROJECT
- 2021-08-09
Friends and family, it has been a long while since we have made a post. (fb) ... more
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- JACKSON PROJECT
- 2021-08-09
Friends and family, it has been a long while since we have made a post. (fb) ... more
Liked (33) Commented (0)Discussions
Odpovědí v diskuzi
1
1. What innovative strategies can we implement to increase public awareness about Krabbe Disease and other Leukodystrophies in our communities?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we effectively advocate for policy changes to expand newborn screening for rare diseases like Krabbe Disease?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
What an inspiring mission! 💙 Thank you for shining a light on Krabbe Disease and supporting families affected by Leukodystrophy. Together, we can make a difference! #JacksonProject #LeukodystrophyAwareness
Brooklyn Simmons
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So grateful for the work you do! This awareness is so crucial for early diagnosis and improving lives. Let's keep spreading the word about the importance of newborn screening! 🌟 #SupportTheCause #KrabbeDisease
Brooklyn Simmons
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