JACKSON PROJECT
Non-Profit raising awareness about #Krabbe, supporting affected families and helping fund research. #NewbornScreening #Leukodystrophy We aim to raise awareness about Krabbe Disease and other Leukodystrophies, provide support for families, and advocate for expanded newborn screening. The Jackson Project is dedicated to improving the quality of life for families affected by Leukodystrophy. The foundation accomplishes this by financially supporting families in obtaining the equipment or services they need to best care for those affected, raising awareness about Leukodystrophies and the critical role of newborn screening, and partnering with the Leukodystrophy Care Network to advance standards of care and specialized centers of excellence.
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465069894
5100
X (Twitter)
48
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Roanoke
Krabbe Disease Non-Profit Foundation: The Jackson Project The Jackson Project Home Meet Jackson Krabbe Family Support Research Events Contact Us Welcome to The Jackson Project The Jackson Project is a 100 volunteer run 501c3 public charityformed in the State of Texas in 2014. The organization is formed in honor ofJackson Wallace affectionately known as JBird who fought a fatal form of Leukodystrophy called Krabbe Disease. The foundation is dedicated to improving the quality of life for families affected by Leukodystrophy by Financially supporting families in obtaining equipment or services they need to best care for those affected. Raising awareness about Krabbe other Leukodystrophies and the critical role of Newborn Screening.
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JACKSON PROJECT
Friends and family, it has been a long while since we have made a post. We understand that the last year and a half has impacted everyone in so many ways. Because of this, we have not sought out many fundraising opportunities as we know the burdens everyone’s been facing.
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JACKSON PROJECT
Friends and family, it has been a long while since we have made a post. We understand that the last year and a half has impacted everyone in so many ways. Because of this, we have not sought out many fundraising opportunities as we know the burdens everyone’s been facing.
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