The Joshua Frase Foundation for Congenital Myopathy Research, Inc.

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The Joshua Frase Foundation (JFF) is a 501C3 non-profit organization that was founded in 1996; a year after Paul and Alison’s son was born with an ultra rare and fatal neuromuscular disorder. Without hesitation, the foundation began funding cutting-edge research in the area of regenerative medicine, gene therapy and genetics since 1997. JFF’s mission is twofold: To continue to be a catalyst in finding a cure or treatment for centronuclear and myotubular myopathies while supporting families whose lives are affected by these disorders. Not only has JFF been able to fund groundbreaking science, pioneering into a curative treatment that has the potential to transform neuromuscular research; it has also built an international community of children and their parents.

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597059890

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Ponte Vedra Beach

Address: PO Box 2041, Ponte Vedra BeachWeb: Sign in to see organisation websiteRevenue: 51271ICO: 597059890

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