The Joshua Frase Foundation for Congenital Myopathy Research, Inc.
The Joshua Frase Foundation (JFF) is a 501C3 non-profit organization that was founded in 1996; a year after Paul and Alison’s son was born with an ultra rare and fatal neuromuscular disorder. Without hesitation, the foundation began funding cutting-edge research in the area of regenerative medicine, gene therapy and genetics since 1997. JFF’s mission is twofold: To continue to be a catalyst in finding a cure or treatment for centronuclear and myotubular myopathies while supporting families whose lives are affected by these disorders. Not only has JFF been able to fund groundbreaking science, pioneering into a curative treatment that has the potential to transform neuromuscular research; it has also built an international community of children and their parents.
ICO
597059890
Web
Sign in to see organisation website
Address
Ponte Vedra Beach
From Social media
News about from their social media (Facebook and X).
Data about organisation
Ponte Vedra Beach
Organisations from The Joshua Frase Foundation for Congenital Myopathy Research, Inc.
More from Ponte Vedra BeachInteresting nearby
Interesting organisations close by to residence of The Joshua Frase Foundation for Congenital Myopathy Research, Inc.

HEAL - Helping Enrich Autistic Lives provides grants and iPads to local organizations, camps and scho.

KPM Charities Inc DBA V for Victory
V for Victory provides local families battling cancer with services that meet everyday needs.

The Discovery School of Jacksonville Inc
The Discovery School is a nonprofit, independent school offering a Montessori/IB curriculum for stud.
Join us and make a difference for the future!
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News

Halle Bailey inspires us all by using her voice to advocate for postpartum awareness—reminding us how important it is to support new moms! 🌼 #PostpartumAwareness #MentalHealthMatters
Halle Bailey Reveals Why It's 'So Important' to Talk About Her Postpartum Experience, Shares the One Thing All Moms Need
PEOPLE.com
Like Comment