Xeroderma Pigmentosum Family Support Group
The XP Family Support Group is dedicated to improving the quality of life of those with xeroderma pigmentosum. Visit https://t.co/2rdJrVKCts for more info! 🌟 Our mission: Enhancing the quality of life for those affected by Xeroderma Pigmentosum (XP) through education, support services, and research. Join us in raising awareness and driving advancements towards a cure. Together, we can make a difference! The Xeroderma Pigmentosum (XP) Family Support group exists to improve the quality of life for those persons with XP and other diagnosed ultraviolet light conditions.
Founded
2005
1900
X (Twitter)
194
Address
Elk Grove
XP Family Support Group – Join the fight and help support XPFSG Improving the quality of life for people with Xeroderma Pigmentosum XP and other diagnosed UV light conditions. In a Million Xeroderma Pigmentosa XP is a rare autosomal recessive genetic disorder that affects about one in one million people in the United States. Percent Roughly 20 of patients affected with XP develop a progressive neurological disease. Percent Approximately 50 of individuals with XP experience acute sun sensitivity within the first few months of life.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about Xeroderma Pigmentosum Family Support Group from their social media (Facebook and X).
- Xeroderma Pigmentosum Family Support Group
- 2025-06-19
🎉 Thank you to everyone who responded to our recent poll. (fb) ... more
Liked (12) Commented (0)- Xeroderma Pigmentosum Family Support Group
- 2025-06-09
☀️ Hey XP Fam. Summer is officially in full swing. (fb) ... more
Liked (8) Commented (0)Discussions
Odpovědí v diskuzi
1
- What are the most effective strategies for raising awareness about Xeroderma Pigmentosum in schools and communities?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
- How can we better support families dealing with the unique challenges posed by Xeroderma Pigmentosum, especially in terms of mental health and social interaction?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💛 It's truly inspiring to see the dedication of the XP Family Support Group! Together, we can bring hope and support to those affected by Xeroderma Pigmentosum. Let’s raise awareness and help reach that fundraising goal! 🌟
Brooklyn Simmons
Product Manager
🌈 Every small effort counts! Grateful for the work this organization is doing to improve lives and push for a cure for XP. Let’s spread the word and support these amazing families! #XPawareness 💪✨
Brooklyn Simmons
Product Manager
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