Xeroderma Pigmentosum Family Support Group
XP Family Support Group – Join the fight and help support XPFSG
The XP Family Support Group is dedicated to improving the quality of life of those with xeroderma pigmentosum. Visit https://t.co/2rdJrVKCts for more info! 🌟 Our mission: Enhancing the quality of life for those affected by Xeroderma Pigmentosum (XP) through education, support services, and research. Join us in raising awareness and driving advancements towards a cure. Together, we can make a difference! The Xeroderma Pigmentosum (XP) Family Support group exists to improve the quality of life for those persons with XP and other diagnosed ultraviolet light conditions.
593824809
EIN
2005
Founded
Elk Grove, CA 95624 USA
Address
xpfamilysupport.org
Web
XPFamilySupport
Twitter (194)
XPFSG
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Improving the quality of life for people with Xeroderma Pigmentosum XP and other diagnosed UV light conditions. In a Million Xeroderma Pigmentosa XP is a rare autosomal recessive genetic disorder that affects about one in one million people in the United States. Percent Roughly 20 of patients affected with XP develop a progressive neurological disease. Percent Approximately 50 of individuals with XP experience acute sun sensitivity within the first few months of life.
Birth Defects, Genetic Diseases Health Support Services Other Mental Health, Crisis Intervention N.E.C.
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