Xeroderma Pigmentosum Family Support Group
The XP Family Support Group is dedicated to improving the quality of life of those with xeroderma pigmentosum. Visit https://t.co/2rdJrVKCts for more info! 🌟 Our mission: Enhancing the quality of life for those affected by Xeroderma Pigmentosum (XP) through education, support services, and research. Join us in raising awareness and driving advancements towards a cure. Together, we can make a difference! The Xeroderma Pigmentosum (XP) Family Support group exists to improve the quality of life for those persons with XP and other diagnosed ultraviolet light conditions.
Founded
2005
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XP Family Support Group – Join the fight and help support XPFSG Improving the quality of life for people with Xeroderma Pigmentosum XP and other diagnosed UV light conditions. In a Million Xeroderma Pigmentosa XP is a rare autosomal recessive genetic disorder that affects about one in one million people in the United States. Percent Roughly 20 of patients affected with XP develop a progressive neurological disease. Percent Approximately 50 of individuals with XP experience acute sun sensitivity within the first few months of life.
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Join us and make a difference for the future!
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