NOAHS HOPE HOPE 4 BRIDGET FOUNDATION
The mission of the Noah's Hope – Hope4Bridget Foundation is to raise funds in support of scientific research, and inform the community about Batten Disease. Batten Disease is a rare, fatal autosomal recessive neurodegenerative disorder that begins in childhood.
Founded
2015
Web
noahshope.com
Address
Downers Grove
Noah's Hope - Every Childhood Disease Deserves a Cure Click Rare Reflections to read about Batten and rare disease reflections by Noah Laines parents Saving Childhood Noah Laine Our Mission New therapies supported by our events research advocacy and fundraising now help to delay symptoms of CLN2 Batten disease but there is so much more to do. It is too late for our children. Join us in giving the gift of childhood back to other children with Batten disease. Please Stay In Touch Please join us as we work to give the gift of childhood back to children with Batten disease.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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Discussions
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1. What innovative fundraising strategies have you seen or implemented that effectively raise awareness and support for rare diseases like Batten disease?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. How can we better engage communities and stakeholders in the conversation about the impact of childhood diseases and the importance of research funding?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
What an incredible mission! Thank you for fighting for these children and their futures. 💖 Every bit of support counts! #NoahsHope
Brooklyn Simmons
Product Manager
I’m inspired by all the hard work and dedication of everyone involved in this foundation! Together, we can make a difference in the lives of children with Batten Disease. 🌟 #Hope4Bridget
Brooklyn Simmons
Product Manager
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Kendall Monroe
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