Organic Acidemia Association Corporation

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The Organic Acidemia Assn, our mission is to support families, share awareness of organic acid disorders, fund research for better treatments & advocate NBS. The Organic Acidemia Association is a 501c3 organization supporting families with rare OA disorders The Organic Acidemia Association is a non-profit organization whose mission is to empower families and health care professionals with knowledge in organic acidemia metabolic disorders. We support early intervention through expanded newborn screening, solicit contributions and distribute funding that supports research toward improved treatment and eventual cures in the areas of Organic Acid disorders.

ICO

481038050

Facebook

1600

X (Twitter)

935

Address

Golden Valley

Address: 9040 Duluth Street, Golden ValleyWeb: Sign in to see organisation websiteFacebook: OrganicAcidemiaAssociationX (Twitter): organicacidemiaVolunteers: 7Revenue: 96803ICO: 481038050

Organic Acidemia Association You are now logged out. We are parents and we advocate We are a 501c3 nonprofit organization made up of parents of children with organic acidemiametabolic disorders. Organic Acidemias are a group of inheritable genetic metabolic disordersin which there is a defect in protein metabolism where an essential enzyme is absent ormalfunctioning. Our mission is to empower families and health care professionals with knowledge in these disorders.

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News about from their social media (Facebook and X).

Jack

How can we better support families navigating the challenges of organic acidemia, particularly in terms of access to nutrition and therapy resources?

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Lucy

💚 Thank you for all your hard work in supporting families affected by organic acid disorders! Your dedication to raising awareness and funding research is truly inspiring! Together, we can make a difference! 🙌

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Vincent

🌟 Grateful for the Organic Acidemia Association and all they do to empower families and support early intervention. Every dollar counts toward finding better treatments and helping those in need! Keep up the amazing work! 💪❤️

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Monica

What strategies can we implement to raise awareness about organic acid disorders in our communities?

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