Center for Ehlers Danlos Syndrome Alliance Inc

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Proudly helping those who have EDS and bring awareness to the condition. http://t.co/VMk9zRfCEn CEDSA is all about the patient, their caregivers, physicians and their staff, plus schools and teache

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452821027

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978

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Cass City

Address: 4805 Hospital Dr, Cass CityWeb: Sign in to see organisation websiteFacebook: CEDSAorgX (Twitter): CEDSAorgICO: 452821027

CEDSA Home Education Advocacy Do you have a child in Public School that is having difficulties to be successful and achieve their potential. Is the school not appreciating your wishes and goals for your Legal Advocacy Recently the alligations of abuse and neglect is on a huge climb in the EhlersDanlos Syndrome community. Most of the times it is due to the fact the doctors making EDS Awareness Childs Life with EDS Genetic not Abuse. Life with EDS POTS EDS CEDSA Quick Reference Chiari P.

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Center for Ehlers Danlos Syndrome Alliance Inc

Today, we pause to reflect on the mothers in our lives whether it’s our own, our wives who raise our children, or those who step into the role of “mother” for someone in need. To all of you: we tip our hats and say thank you. Thank you for your strength, your compassion, and your unwavering love.

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Mark

I appreciate the resources and support CEDSA provides for families navigating the challenges of EDS. It's inspiring to see such dedication to education and advocacy—let's keep pushing for change and awareness! 🌟 #EDSawareness

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Center for Ehlers Danlos Syndrome Alliance Inc

Today, we pause to reflect on the mothers in our lives whether it’s our own, our wives who raise our children, or those who step into the role of “mother” for someone in need. To all of you: we tip our hats and say thank you. Thank you for your strength, your compassion, and your unwavering love.

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Michelle

❤️ Thank you, CEDSA, for all that you do to support individuals with Ehlers-Danlos Syndrome! Your commitment to advocating for patients and their families makes a world of difference. Together, we can raise awareness and create a more understanding community! 💪

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Kate

What are some effective strategies for advocating for EDS awareness and support within public schools to better accommodate children with the condition?

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Adam

How can the Ehlers-Danlos Syndrome community collaborate with healthcare professionals to address the rising allegations of abuse and neglect among EDS patients, particularly in relation to misdiagnosis or misunderstanding of their symptoms?

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