Rare and Undiagnosed Network Inc

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RUN for those affected with rare/undiagnosed conditions: Raise awareness. Urge insurance companies to reimburse WGS. Network to find answers. #RareUndiagnosed To support patients & families with rare & undiagnosed genetic conditions, and to connect healthcare providers, researchers & patients for healthier lives. RUN stands for the Rare & Undiagnosed Network. We're a group of advocates, patients, families, researchers, and healthcare providers who share the same mission and vision: To empower rare and undiagnosed patients and their families with genomic information and community through advocacy, networking and support.

ICO

471659983

Facebook

2800

X (Twitter)

1700

Address

Salt Lake City

Address: 4820 Mile High Drive, Salt Lake CityWeb: Sign in to see organisation websiteFacebook: rareundiagnosedX (Twitter): rareundiagnosedICO: 471659983

Rare & Undiagnosed Network Take the Pledge to RUN RUN stands for Rare Undiagnosed Network. Were a group of advocates patients families researchers and healthcare providers who share the same mission and vision To empower rare and undiagnosed patients and their families with genomic information and community through advocacy networking and support. Nearly 1 in 10 of your friends family and colleagues are living with a rare or undiagnosed disease half are children. Join the RUN community and change everything.

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Christine

🌟 It's so inspiring to see the passion and dedication of the RUN community! Let's come together to raise awareness for those impacted by rare and undiagnosed genetic conditions. Every voice matters! πŸ’• #RareUndiagnosed #TogetherWeCan

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Victoria

πŸ’ͺ Incredible work being done by Rare and Undiagnosed Network! Together, we can create a brighter future for families navigating these challenging medical journeys. 🌍✨ Let's support whole genome sequencing and ensure every family gets the answers they deserve! #PledgeToRUN

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Clara

How can our community better support families navigating the emotional and financial challenges of having a child with a rare or undiagnosed condition?

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Diana

What strategies can we implement to advocate for insurance companies to reimburse whole genome sequencing for patients with rare and undiagnosed genetic conditions?

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