Rare and Undiagnosed Network Inc
RUN for those affected with rare/undiagnosed conditions: Raise awareness. Urge insurance companies to reimburse WGS. Network to find answers. #RareUndiagnosed To support patients & families with rare & undiagnosed genetic conditions, and to connect healthcare providers, researchers & patients for healthier lives. RUN stands for the Rare & Undiagnosed Network. We're a group of advocates, patients, families, researchers, and healthcare providers who share the same mission and vision: To empower rare and undiagnosed patients and their families with genomic information and community through advocacy, networking and support.
ICO
471659983
2800
X (Twitter)
1700
Address
Salt Lake City
Rare & Undiagnosed Network Take the Pledge to RUN RUN stands for Rare Undiagnosed Network. Were a group of advocates patients families researchers and healthcare providers who share the same mission and vision To empower rare and undiagnosed patients and their families with genomic information and community through advocacy networking and support. Nearly 1 in 10 of your friends family and colleagues are living with a rare or undiagnosed disease half are children. Join the RUN community and change everything.
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Good News
Martha
2025-10-28
🚑✨ Great news from Wake County EMS! They're changing how they respond to 911 calls by reducing sirens and lights for most emergencies. This thoughtful approach prioritizes safety, minimizes road confusion, and aims to create a safer environment for everyone. Change is possible! #GoodNews #CommunitySafety
Change coming to Wake County EMS: Ambulances to silence sirens, turn off lights for most 911 calls
WRAL
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