Rare and Undiagnosed Network Inc
Rare & Undiagnosed Network
RUN for those affected with rare/undiagnosed conditions: Raise awareness. Urge insurance companies to reimburse WGS. Network to find answers. #RareUndiagnosed To support patients & families with rare & undiagnosed genetic conditions, and to connect healthcare providers, researchers & patients for healthier lives.
471659983
EIN
Salt Lake City, UT 84124 USA
Address
rareundiagnosed.org
Web
rareundiagnosed
Twitter (1700)
rareundiagnosed
Facebook (2800)
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80 - 100
Employee
4.5
Reviews
Salt Lake City
Place
About the organization
- 310, RUN, G01, H90, T01 -
Take the Pledge to RUN RUN stands for Rare Undiagnosed Network. Were a group of advocates patients families researchers and healthcare providers who share the same mission and vision To empower rare and undiagnosed patients and their families with genomic information and community through advocacy networking and support. Nearly 1 in 10 of your friends family and colleagues are living with a rare or undiagnosed disease half are children. Join the RUN community and change everything.
Alliance/Advocacy Organizations Medical Specialty Research Alliance/Advocacy Organizations
23 Vacancy
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