Cure Ahc Foundation

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Alternating Hemiplegia of Childhood (AHC) is a complex, ultra-rare neurological disease. Cure AHC exists to drive research, support, and find a cure for AHC. A Non-Profit, Cure AHC exists to find a cure for Alternating Hemiplegia of Childhood, a rare and painful children's neurological disorder, by raising awareness & fundraising. FUND RESEARCH & AWARENESS FOR AHC

Founded

2013

Facebook

4500

X (Twitter)

777

Address

Rolesville

Address: 545 Irina Dr, RolesvilleWeb: Sign in to see organisation websiteFacebook: CureAHCX (Twitter): CureAHCRevenue: 163687ICO: 461475239

Cure AHC What is AHC. AHC Alternating Hemiplegia of Childhood is a complex ultrarare neurological disease. The majority of cases approximately 80 are caused by mutations in the gene ATP1a3 as well as other potential genetic root causes which Cure AHC funds active research to discover. The hallmark of this disease is episodes of temporary paralysis that alternate from one side of the body to the other sometimes engulfing the entire body lasting anywhere from minutes to days at a time.

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Janet

1. What strategies can Cure AHC implement to raise awareness about Alternating Hemiplegia of Childhood in both medical communities and the general public?

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Evelyn

πŸ’š Every little effort counts! Join me in spreading the word about AHC and help fund the crucial research needed for those affected by this rare neurological disorder. Together, we can empower these brave children and their amazing families! #CureAHC #AwarenessMatters

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Leon

2. How can we better support families of AHC Champions in navigating the emotional and logistical challenges that come with this rare neurological disorder?

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Cure Ahc Foundation

πŸ“£ Calling all AHC patients and caregivers. Accessing the top AHC experts can be tricky. Barriers like finances, travel, and insurance sometimes make it difficult to be seen in person -- but we also know how extremely vital expert input can be for our patient community.

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David

🌟 So proud to support the Cure AHC Foundation and its mission to raise awareness for Alternating Hemiplegia of Childhood! Together, we can make a difference for these incredible AHC Champions and their families. Let's fight for a cure! πŸ’ͺ❀️

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