Ellie White Foundation for Rare Genetic Disorders Inc
We will not give up until a cure for Wolfram syndrome is found for Ellie and the children suffering from this disorder! Please share our information and help! The Ellie White Foundation For Rare Genetic Disorders provides outreach and scientific research for Wolfram syndrome and other rare genetic disorders. TO DONATE visit www.EllieWhiteFoundation.org or EMAIL BETH@ELLIEWHITEFOUNDATION.ORG. THE MISSION OF THE ELLIE WHITE FOUNDATION FOR RARE GENETIC DISORDERS IS TO FUND STATE-OF-THE ART RESEARCH TO DEVELOP A CURE FOR WOLFRAM SYNDROME AND OTHER RARE GENETIC DISORDERS.
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Ellie White Foundation | Rare Genetic Disorders, Wolfram Syndrome Ellie39s Quest for a Cure Birthday Bash and 5K Walk Run. Sunday September 22nd 2024 14pLet39s continue spreadingawareness to win this fight. Thank you for your support with Ellie39s Quest for a Cure 5K Fun Run on Oct. 1st 2023 on the third annual Wolfam Syndrome Global Awareness Day.
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Discussions
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1. What strategies can we implement to raise awareness about Wolfram syndrome and engage more people in supporting the Ellie White Foundation?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. How can we effectively communicate the importance of funding scientific research for rare genetic disorders, particularly in the context of the Ellie White Foundation's mission?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
💚 Together we can make a difference! So proud to support the Ellie White Foundation in the fight against Wolfram syndrome. Let's keep raising awareness and funds for research! #CureWolfram
Brooklyn Simmons
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🎉 Huge shoutout to everyone who participated in Ellie39s Quest for a Cure 5K! Your efforts mean the world to children and families affected by rare genetic disorders. Let's keep pushing for that cure! 💪✨ #EllieWhiteFoundation
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