THE MARFAN FOUNDATION INC .

The Marfan Foundation | Know the Signs | Fight for Victory

The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions. The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.
521265361
EIN
1981
Founded
Port Washington, NY 11050 USA
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marfan.org
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THE MARFAN FOUNDATION INC .
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Know the Signs Fight for Victory Conditions Related Links Living With Marfan Related Links Research Related Links Resources Related Links Get Involved Related Links About Us Related Links We save and improve lives of people living with genetic aortic and vascular conditions. The Marfan Foundation is a nonprofit organization that saves and improves lives while creating a community for all individuals with genetic aortic and vascular conditions including Marfan LoeysDietz and Vascular EhlersDanlos syndromes. Together We Can Know the Signs and Fight for Victory MarfanFoundation LoeysDietz Syndrome Foundation The VEDS Movement Stay Connected on Social Media Resources for Affected Individuals Resources forHealthcareProfessionals Resources forResearchers Latest Research and Updates The Marfan Foundation is the primary source for uptodate and trustworthy information for patients and family members as well as healthcare providers and researchers. If you or someone you love has Marfan syndrome or a related conditions we offer easytounderstand materials to help you on your medical journey.

Alliance/Advocacy Organizations Birth Defects, Genetic Diseases Diseases, Disorders, Medical Disciplines N.E.C.
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