THE MARFAN FOUNDATION INC .
The Marfan Foundation | Know the Signs | Fight for Victory
521265361
1981
Port Washington, NY 11050 USA
marfan.org
marfanfdn
TheMarfanFoundation
336076
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News
VASCULAR Ehlers-Danlos syndrome has the power to break hearts, tear aortas, and rupture organs. During EDS Awareness Month, remember that VEDS is more than hypermobility. VASCULAR EDS can end lives suddenly and without warning. Awareness saves lives. 💪 Know the signs: thevedsmovement.org ❤️ #VEDS #TheVMatters #KnowConnectThrive (fb)
Walk for Victory—YOU DID THAT! 🎉A huge thank you to our Iowa and Pittsburgh community members who came out this past weekend and made a big impact. We can't wait to see you again! #MyWalkSavesLives #Marfan #LoeysDietz #VEDS (fb)
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Nearby
28
500
4.5
Port Washington
About the organization
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Know the Signs Fight for Victory Conditions Related Links Living With Marfan Related Links Research Related Links Resources Related Links Get Involved Related Links About Us Related Links We save and improve lives of people living with genetic aortic and vascular conditions. The Marfan Foundation is a nonprofit organization that saves and improves lives while creating a community for all individuals with genetic aortic and vascular conditions including Marfan LoeysDietz and Vascular EhlersDanlos syndromes. Together We Can Know the Signs and Fight for Victory MarfanFoundation LoeysDietz Syndrome Foundation The VEDS Movement Stay Connected on Social Media Resources for Affected Individuals Resources forHealthcareProfessionals Resources forResearchers Latest Research and Updates The Marfan Foundation is the primary source for uptodate and trustworthy information for patients and family members as well as healthcare providers and researchers. If you or someone you love has Marfan syndrome or a related conditions we offer easytounderstand materials to help you on your medical journey.
Alliance/Advocacy Organizations Birth Defects, Genetic Diseases Diseases, Disorders, Medical Disciplines N.E.C.
