THE MARFAN FOUNDATION INC .

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The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions. The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Save and improve lives, while creating communities, for all individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.

Founded

1981

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26000

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5219

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Address: 22 Manhasset Ave, Port WashingtonWeb: Sign in to see organisation websiteFacebook: TheMarfanFoundationX (Twitter): marfanfdnEmployees: 28Volunteers: 500Revenue: 5486020ICO: 521265361

The Marfan Foundation | Know the Signs | Fight for Victory Know the Signs Fight for Victory Conditions Related Links Living With Marfan Related Links Research Related Links Resources Related Links Get Involved Related Links About Us Related Links We save and improve lives of people living with genetic aortic and vascular conditions. The Marfan Foundation is a nonprofit organization that saves and improves lives while creating a community for all individuals with genetic aortic and vascular conditions including Marfan LoeysDietz and Vascular EhlersDanlos syndromes. Together We Can Know the Signs and Fight for Victory MarfanFoundation LoeysDietz Syndrome Foundation The VEDS Movement Stay Connected on Social Media Resources for Affected Individuals Resources forHealthcareProfessionals Resources forResearchers Latest Research and Updates The Marfan Foundation is the primary source for uptodate and trustworthy information for patients and family members as well as healthcare providers and researchers. If you or someone you love has Marfan syndrome or a related conditions we offer easytounderstand materials to help you on your medical journey.

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Grace

2. What role can social media play in building a supportive community for individuals with genetic aortic and vascular conditions, and how can the Marfan Foundation leverage these platforms effectively?

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Emily

1. How can the Marfan Foundation enhance its outreach efforts to better educate communities about the signs and symptoms of Marfan syndrome and related conditions?

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Janet

❤️ Thank you, Marfan Foundation, for raising awareness and providing resources for families dealing with these challenges. Your commitment to improving quality of life is truly admirable! Let's keep spreading love and understanding! 🙌 #KnowTheSigns #SupportEachOther

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Thomas

🌟 So grateful for the incredible work the Marfan Foundation does! It's inspiring to see how you save lives and create a supportive community for those affected by genetic conditions. Together, we can make a difference! 💙 #FightForVictory #MarfanFoundation

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