NATIONAL UREA CYCLE DISORDERS FOUNDATION

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Nonprofit supporting patients & families affected by urea cycle disorders. Working to advance research, improve care & raise awareness that saves lives #NUCDF Join us in our fight to conquer urea cycle disorders. UCD Families & friends ARE our Foundation! The National Urea Cycle Disorders Foundation was founded in 1990 by a small group of parents of children affected by urea cycle disorders. Since 1990, NUCDF has grown to be the recognized leader in the fight to conquer urea cycle disorders. NUCDF's mission is dedicated to the identification, treatment and cure of these devastating disorders, affecting approximately 1:14,000 births and leading to developmental disability in children. NUCDF's goals are to stimulate and support medical research activities, raise awareness and educate medical personnel on the diagnosis and treatment of UCD, provide information and support to affected families, increase public awareness of existence of urea cycle disorders, and educate legislators on the needs of families affected by these rare disorders.

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Address: 75 S. Grand Ave, PasadenaWeb: Sign in to see organisation websiteFacebook: nucdfX (Twitter): CureUCDEmployees: 2Volunteers: 4Revenue: 518249ICO: 411661444

National Urea Cycle Disorders Foundation NUCDFs YouTube channel Youd be surprised at how far we can stretchadollar. Improving outcomes for those affected by UCD. We know Urea Cycle Disorders. We live to conquer them.

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NATIONAL UREA CYCLE DISORDERS FOUNDATION

Information is now available from the second session of our TeleECHO series. You can find recordings and other details here: https://nucdf. org/about-ucd/echo-clinician-education-series.

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Dana

2. How can we better support families navigating the challenges of caring for loved ones with urea cycle disorders?

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Pauline

Together, we can make a difference! Proud to support the National Urea Cycle Disorders Foundation in their mission to raise awareness and find a cure for UCD! πŸ’š #NUCDF

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Helen

Every dollar counts! Let’s come together to support families affected by urea cycle disorders and bring hope to those in need. Join the fight! πŸ™Œ #ConquerUCD

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Michael

1. What strategies can we implement to raise more awareness about urea cycle disorders in our communities and among healthcare providers?

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