The Snow Foundation
A voice for rare disease, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss neurodegeneration. Raising awareness and funding for Wolfram Syndrome research, an ultra rare disease. The Snow Foundation is a collective voice for Wolfram syndrome patients, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration.
Founded
2012
2600
X (Twitter)
552
Address
Clayton
Home Find Your Community Rare Diseases Common Problems NeverLose Hope Learn Learn more about Wolfram Syndrome. Donate Find out ways you can donate. Events Check out our upcoming events. Community Engage with your extended Wolfram family.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about The Snow Foundation from their social media (Facebook and X).
- The Snow Foundation
- 2025-06-03
I would like to present a touching tribute video dedicated to one of our valiant Wolfram warriors, Tara Zigoni, who succumbed to the challenges of Wolfram syndrome. (fb) ... more
Liked (2) Commented (0)
- The Snow Foundation
- 2025-05-29
https://www. healio. com/news/endocrinology/20250527/investigational-oral-therapy-improves-pancreatic-function-symptoms-in-wolfram-syndrome. (fb) ... more
Liked (11) Commented (0)Discussions
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What are some effective strategies for raising awareness about rare diseases like Wolfram Syndrome within local communities?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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How can we better support families affected by Wolfram Syndrome in navigating the healthcare system and accessing necessary resources?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
🌟 So proud to support The Snow Foundation and raise awareness for Wolfram Syndrome! Together, we can make a difference for those affected and work towards a cure. Let’s keep spreading the word! 💙 #WolframSyndromeAwareness #NeverLoseHope
Brooklyn Simmons
Product Manager
💖 Just donated to The Snow Foundation! It's incredible to see a community come together for such an important cause. If you can, please consider contributing or joining an event to help raise awareness for Wolfram Syndrome. Every little bit helps! 🌈 #RareDiseases #FindYourCommunity
Brooklyn Simmons
Product Manager
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