The Snow Foundation

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A voice for rare disease, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss neurodegeneration. Raising awareness and funding for Wolfram Syndrome research, an ultra rare disease. The Snow Foundation is a collective voice for Wolfram syndrome patients, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration.

Founded

2012

Facebook

2600

X (Twitter)

552

Address

Clayton

Address: P.O. Box 50224, ClaytonWeb: Sign in to see organisation websiteFacebook: snowfoundationX (Twitter): ASnowFoundationVolunteers: 8Revenue: 477435ICO: 455308117

Home Find Your Community Rare Diseases Common Problems NeverLose Hope Learn Learn more about Wolfram Syndrome. Donate Find out ways you can donate. Events Check out our upcoming events. Community Engage with your extended Wolfram family.

News & Updates XX

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News about from their social media (Facebook and X).

Leon

🌟 So proud to support The Snow Foundation and raise awareness for Wolfram Syndrome! Together, we can make a difference for those affected and work towards a cure. Let’s keep spreading the word! πŸ’™ #WolframSyndromeAwareness #NeverLoseHope

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Monica

What are some effective strategies for raising awareness about rare diseases like Wolfram Syndrome within local communities?

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The Snow Foundation

Wolfram Syndrome Global Awareness Day.

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Monica

πŸ’– Just donated to The Snow Foundation! It's incredible to see a community come together for such an important cause. If you can, please consider contributing or joining an event to help raise awareness for Wolfram Syndrome. Every little bit helps! 🌈 #RareDiseases #FindYourCommunity

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Patrick

How can we better support families affected by Wolfram Syndrome in navigating the healthcare system and accessing necessary resources?

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