The Snow Foundation
Home
A voice for rare disease, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss neurodegeneration. Raising awareness and funding for Wolfram Syndrome research, an ultra rare disease. The Snow Foundation is a collective voice for Wolfram syndrome patients, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration.
455308117
EIN
2012
Founded
Clayton, MO 63105 USA
Address
thesnowfoundation.org
Web
ASnowFoundation
Twitter (552)
snowfoundation
Facebook (2600)
Podobné organizace
WILLIAMS SYNDROME ASSOCIATION INC |
|
Ellie White Foundation for Rare Genetic Disorders Inc |
|
PROJECT ALIVE |
|
Yoey S Hope Inc |
|
Rare Genes Movement |
Podobné organizace global
WILLIAMS SYNDROME FOUNDATION LIMITED |
|
WOLF HIRSCHHORN SYNDROME TRUST |
|
WOLFRAM SYNDROME UK |
|
LYNCH SYNDROME UK |
|
THE CHILDREN'S RARE DISORDERS FUND LTD |
More from Clayton
California Reentry Institute |
|
CLAYTON FIRE COMPANY NO 1 INC |
|
JAMIE MORGAN MINISTRIES |
|
PEOPLE LAUNCHING OF NORTH CAROLINA |
|
CLAYTON LOCAL DEVELOPMENT CORPORATION |
Similar social media (3152)
Dwight Hall at Yale3153 |
|
Boys Girls Clubs Hartford Bld Trust3153 |
|
Samuel U. Rodgers Health Center3153 |
|
Our Dyslexic Children Inc3153 |
|
Sedona Lago Gardens3153 |
More Specifically Named Diseases Research
Kilo Diabetes & Vascular Research Foundation |
|
Matthew and Andrew Akin Foundation |
|
Longer Life Foundation |
|
Hope |
News
03 čer
I would like to present a touching tribute video dedicated to one of our valiant Wolfram warriors, Tara Zigoni, who succumbed to the challenges of Wolfram syndrome. Her inspiring story and unwavering faith in God, enabled her to lead a joyful and meaningful life while battling this relentless disease (fb)
29 kvě
https://www.healio.com/news/endocrinology/20250527/investigational-oral-therapy-improves-pancreatic-function-symptoms-in-wolfram-syndrome (fb)
Poslední diskuze
Nearby
8
Volunteer
4.5
Reviews
Clayton
Place
About the organization
- H80, G80, E99 -
Find Your Community Rare Diseases Common Problems NeverLose Hope Learn Learn more about Wolfram Syndrome. Donate Find out ways you can donate. Events Check out our upcoming events. Community Engage with your extended Wolfram family.
Specifically Named Diseases Research Specifically Named Diseases Health - General & Rehabilitative N.E.C.
23 Vacancy
More Detail
