Mtm-Cnm Family Connection Inc
MTM-CNM Family Connection is a 501c3 that exists to connect those with Myotubular Myopathy & Centronuclear Myopathy to resources, research, and relationships! MTM-CNM Family Connection, Inc., a non-profit that connects families affected by Myotubular & Centronuclear Myopathy to resources, research & relationships
ICO
383932529
989
X (Twitter)
239
Address
Methuen
MTM-CNM Family Connection Thank you for joining our recent webinar Learn about our advocacy for patient engagement in drug development Myotubular Centronuclear MyopathyExternallyLed PatientFocused Drug Development PFDDVirtual MeetingAugust 3rd 20211000 am EDT300 pm EDT Thank you for your interest in this important event. We had a great time at the 2019 MTMCNM Family Conference. July 1921 St. Louis MO Celebrating a decade of connections.
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Mtm-Cnm Family Connection Inc
The MTM and CNM Patient Registry has developed a short, anonymous survey specifically for females with variants in the MTM1 Gene. All females, whether experiencing impacts of the having a variant in the MTM1 gene or not, are encouraged to help contribute to greater awareness and understanding of how MTM impacts females. Please copy and paste this link to complete the survey by Sunday July 27th.
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