PARENTS OF INFANTS AND CHILDREN WITH KERNICTERUS INC

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Parents of Infants and Children with Kernicterus (PICK) is a parent-run 501 (c)(3) non-profit organization dedicated to research, education, prevention and outreach for children with kernicterus and their families. We are passionately pursuing ways to make the future of those affected by kernicterus brighter. Our Goals include: 1. Provide rich support network and resources for families affected by kernicterus2. Identify and support research and treatments to improve the quality of life for those living with kernicterus3. Provide educational resources and collaborate with healthcare organizations to raise awareness of and prevent kernicterus.

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Olathe

Address: PO BOX 4482, OlatheWeb: Sign in to see organisation websiteICO: 460495428

parents of infants and children with kernicterus parents of infants and children with kernicterus Born healthy toxic jaundice the K altered our children. K is for Kernicterus and its something that doesnt have to happen No one is born with KI. This preventable malady can occur when jaundice hyperbilirubinemia is mismanaged in the first days or weeks of life. Athetoid cerebral palsy auditory neuropathy cortical visual impairment dental enamel hypoplasia and gaze abnormalities are the common neurological sequelae.

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Ellen

1. What are some effective advocacy strategies that parents of children with kernicterus can use to raise awareness about the importance of newborn screening and timely treatment for jaundice?

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Anna

Kernicterus is a condition we can prevent with proper screening and care for our newborns. Join us in advocating for every infant's health! Together, we can make a difference! 🌟 #PICK #KernicterusAwareness

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Diana

2. How can we collaborate with healthcare professionals to improve the management protocols for hyperbilirubinemia in infants and prevent cases of kernicterus?

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Rachel

Every child deserves the chance to thrive without the challenges of preventable conditions like kernicterus. Let’s raise awareness and support the families affected! 💛 #PreventKernicterus #HealthyFutures

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Olathe

Organisations from PARENTS OF INFANTS AND CHILDREN WITH KERNICTERUS INC

1. OLATHE ALDERSGATE UNITED METHODIST CHURCH

The United Methodist Church is a worldwide connection of close to 10 million members in over 100 countries including Africa, Asia, Europe and the United States.

2. Feel Better Friends Corp

Feel Better Friends is celebrating 10 years of making handmade dolls stuffed with love and well wishes, crafted by volunteers and donated to children battling cancer and other illnesses.

3. KANSAS CITY AUTOMOTIVE MUSEUM INC

Explore KC’s rich automotive history.

4. MidAmerica Nazarene University

Located just 20 minutes south of KC, we are a community of learners who bring out the best in one another.

5. Midamerica Nazarene University Foundation

Located just 20 minutes south of KC, we are a community of learners who bring out the best in one another.

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