
parents of infants and children with kernicterus
Parents of Infants and Children with Kernicterus (PICK) is a parent-run 501 (c)(3) non-profit organization dedicated to research, education, prevention and outreach for children with kernicterus and their families. We are passionately pursuing ways to make the future of those affected by kernicterus brighter. Our Goals include: 1. Provide rich support network and resources for families affected by kernicterus2. Identify and support research and treatments to improve the quality of life for those living with kernicterus3. Provide educational resources and collaborate with healthcare organizations to raise awareness of and prevent kernicterus.
460495428
EIN
Olathe, KS 66063 USA
Address
pic-k.org
Web
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parents of infants and children with kernicterus Born healthy toxic jaundice the K altered our children. K is for Kernicterus and its something that doesnt have to happen No one is born with KI. This preventable malady can occur when jaundice hyperbilirubinemia is mismanaged in the first days or weeks of life. Athetoid cerebral palsy auditory neuropathy cortical visual impairment dental enamel hypoplasia and gaze abnormalities are the common neurological sequelae.
Specifically Named Diseases Research
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