PARENTS OF INFANTS AND CHILDREN WITH KERNICTERUS INC
Parents of Infants and Children with Kernicterus (PICK) is a parent-run 501 (c)(3) non-profit organization dedicated to research, education, prevention and outreach for children with kernicterus and their families. We are passionately pursuing ways to make the future of those affected by kernicterus brighter. Our Goals include: 1. Provide rich support network and resources for families affected by kernicterus2. Identify and support research and treatments to improve the quality of life for those living with kernicterus3. Provide educational resources and collaborate with healthcare organizations to raise awareness of and prevent kernicterus.
ICO
460495428
Web
pic-k.org
Address
Olathe
parents of infants and children with kernicterus parents of infants and children with kernicterus Born healthy toxic jaundice the K altered our children. K is for Kernicterus and its something that doesnt have to happen No one is born with KI. This preventable malady can occur when jaundice hyperbilirubinemia is mismanaged in the first days or weeks of life. Athetoid cerebral palsy auditory neuropathy cortical visual impairment dental enamel hypoplasia and gaze abnormalities are the common neurological sequelae.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Similar organisations
CHOROIDEREMIA RESEARCH FOUNDATION INC
Raising funds in support of scientific research leading to a treatment or cure of choroideremia.
*Dedicated to the beautiful life and memory of Mila Gray Roomberg *Raising awareness of NF1 and high blood pressure in infants and toddlers.
Our mission is to provide life-saving research funding for children diagnosed with SIOD.
Kcnt1 Slack Epilepsy Foundation Inc
Variants in the KCNT1 gene cause drug-resistant seizures.
Similar Organisations Worldwide
Information, updates and advice about Kleefstra Syndrome, hosted by Kleefstra Syndrome UK.
More from Olathe
Olathe Youth Symphony Association
Outstanding & dedicated young musicians from all over the KC area.
Category Specifically Named Diseases Research
FABRY SUPPORT & INFORMATION GROUP
Founded in 1996, this group was created by Fabry patients to share information with others suffering from the disease and their families as well as educate about treatment options.
Awareness.
Discussions
Odpovědí v diskuzi
1
1. What are some effective advocacy strategies that parents of children with kernicterus can use to raise awareness about the importance of newborn screening and timely treatment for jaundice?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we collaborate with healthcare professionals to improve the management protocols for hyperbilirubinemia in infants and prevent cases of kernicterus?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Every child deserves the chance to thrive without the challenges of preventable conditions like kernicterus. Let’s raise awareness and support the families affected! 💛 #PreventKernicterus #HealthyFutures
Brooklyn Simmons
Product Manager
Kernicterus is a condition we can prevent with proper screening and care for our newborns. Join us in advocating for every infant's health! Together, we can make a difference! 🌟 #PICK #KernicterusAwareness
Brooklyn Simmons
Product Manager
Share your comment / review / opinion
Kendall Monroe
Product Manager
Join us and make a difference for the future!
As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
Brooklyn Simmons
Product Manager
As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.
Kendall Monroe
Product Manager
As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.
Madison Carter
Product Manager
Eduo connects you to causes that actually matter to you.
Riley Bennett
Product Manager
I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
Sydney Parker
Product Manager
Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!
Jordan Blake
Product Manager
I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness
Brooklyn Simmons
Product Manager
Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.
Kendall Monroe
Product Manager
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with Google