Ftd Disorders Registry LLC
The Registry is an online database to collect information from those affected by all types of frontotemporal degeneration (FTD). The Registry is for FTD diagnosed persons, their caregivers and family members. We work together to increase knowledge, raise awareness, and accelerate curative research for frontotemporal degeneration disorders (bvFTD, PPA, PSP, CBD, and FTD-ALS). THE REGISTRY'S MISSION IS TO FACILITATE RESEARCH AND ADVANCE RESEARCH TO ACCELERATE TREATMENT DEVELOPMENT FOR ALL TYPES OF FTD, A DEVASTATING NEURODEGENERATIVE DISEASE THAT STRIKES PEOPLE IN THE PRIME OF LIFE AND FOR WHICH, CURRENTLY, THERE IS NO CURE.
Founded
2015
974
X (Twitter)
689
Address
King of Prussia
Homepage - FTD Disorders Registry NEWS CONTACT US NEWS CONTACT US NUMBERS HAVE POWER. JOIN THE REGISTRY. ADVANCE THE SCIENCE. Together we can find a cure for ftd The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure.
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Ftd Disorders Registry LLC
At the FTD Disorders Registry, we recognize that mental health is an important part of life for everyone impacted by FTD. Living with FTD or caring for someone who does can bring emotional challenges that often go unseen. World Mental Health Day is a reminder that mental health matters for every person living with FTD, their families and care partners, and the professionals who support them.
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