Ftd Disorders Registry LLC

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The Registry is an online database to collect information from those affected by all types of frontotemporal degeneration (FTD). The Registry is for FTD diagnosed persons, their caregivers and family members. We work together to increase knowledge, raise awareness, and accelerate curative research for frontotemporal degeneration disorders (bvFTD, PPA, PSP, CBD, and FTD-ALS). THE REGISTRY'S MISSION IS TO FACILITATE RESEARCH AND ADVANCE RESEARCH TO ACCELERATE TREATMENT DEVELOPMENT FOR ALL TYPES OF FTD, A DEVASTATING NEURODEGENERATIVE DISEASE THAT STRIKES PEOPLE IN THE PRIME OF LIFE AND FOR WHICH, CURRENTLY, THERE IS NO CURE.

Founded

2015

Facebook

974

X (Twitter)

689

Address

King of Prussia

Address: 2700 Horizon Dr Ste 120, King of PrussiaWeb: Sign in to see organisation websiteFacebook: EndFTDregistryX (Twitter): EndFTDregistryEmployees: 5Revenue: 1031597ICO: 473601782

Homepage - FTD Disorders Registry NEWS CONTACT US NEWS CONTACT US NUMBERS HAVE POWER. JOIN THE REGISTRY. ADVANCE THE SCIENCE. Together we can find a cure for ftd The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure.

News & Updates XX

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News about from their social media (Facebook and X).

George

Thank you for all the hard work you're doing to support individuals and families impacted by FTD. I'm proud to stand with you in this important mission! ๐Ÿ™Œโค๏ธ #EndFTD

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Ftd Disorders Registry LLC

At the FTD Disorders Registry, we recognize that mental health is an important part of life for everyone impacted by FTD. Living with FTD or caring for someone who does can bring emotional challenges that often go unseen. World Mental Health Day is a reminder that mental health matters for every person living with FTD, their families and care partners, and the professionals who support them.

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Linda

This is an amazing initiative! Together we can make a meaningful difference for those affected by FTD. Letโ€™s spread the word and join the fight for a cure! ๐Ÿ’™ #FTDAwareness

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Veronica

1. How can the FTD Disorders Registry leverage community feedback to improve its database and support services for affected individuals and their families?

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Goldie

2. What specific strategies can the FTD Disorders Registry implement to raise awareness and engage more participants in their research initiatives?

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