Ftd Disorders Registry LLC
The Registry is an online database to collect information from those affected by all types of frontotemporal degeneration (FTD). The Registry is for FTD diagnosed persons, their caregivers and family members. We work together to increase knowledge, raise awareness, and accelerate curative research for frontotemporal degeneration disorders (bvFTD, PPA, PSP, CBD, and FTD-ALS). THE REGISTRY'S MISSION IS TO FACILITATE RESEARCH AND ADVANCE RESEARCH TO ACCELERATE TREATMENT DEVELOPMENT FOR ALL TYPES OF FTD, A DEVASTATING NEURODEGENERATIVE DISEASE THAT STRIKES PEOPLE IN THE PRIME OF LIFE AND FOR WHICH, CURRENTLY, THERE IS NO CURE.
Founded
2015
974
X (Twitter)
689
Address
King of Prussia
Homepage - FTD Disorders Registry NEWS CONTACT US NEWS CONTACT US NUMBERS HAVE POWER. JOIN THE REGISTRY. ADVANCE THE SCIENCE. Together we can find a cure for ftd The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure.
From Social media
News about from their social media (Facebook and X).
At the FTD Disorders Registry, we recognize that mental health is an important part of life for everyone impacted by FTD. Living with FTD or caring for someone who does can bring emotional challenges that often go unseen. World Mental Health Day is a reminder that mental health matters for every person living with FTD, their families and care partners, and the professionals who support them.
Like Comment
Data about organisation
Alzheimer's Category
Organisations with similar rank to Ftd Disorders Registry LLC in category Alzheimer's
60. ALZHEIMERS FAMILY CAREGIVERS SUPPORT CENTER INC
The Alzheimer's Family Support Center is a non-profit organization serving families dealing with Alzh.
61. Life A Dementia Friendly Foundation
Memory Cafe in Ohio memorycafedirectory.
62. Ftd Disorders Registry LLC
The Registry is for FTD diagnosed persons, their caregivers and family members.
Nonprofit supporting families during Alzheimer’s.
Caring Hands helps seniors with Alzheimer Disease and many different ways such as Memory Books, Memory Cards, companionship, live music performances, hand massage therapy, and much more.
King of Prussia
Organisations from Ftd Disorders Registry LLC
22. Upper Merion Area Community Cupboard
A Community Food Cupboard serving the residents of the Upper Merion Area School District.
23. Pennsylvania Chapter of the American Academy of Pediatrics
The PA Chapter of American Academy of Pediatrics is dedicated to promoting the health and well being of all children and the value of pediatric practice.
24. Ftd Disorders Registry LLC
The Registry is for FTD diagnosed persons, their caregivers and family members.
Improving the lives of vulnerable populations in the community by focusing on education and wellness.
Similar organisations
Similar organisations to Ftd Disorders Registry LLC based on mission, location, activites.
Alzheimers Disease and Related Disorders Association
The Alzheimer's Association 24/7 Helpline provides reliable information and support to all those who need assistance.
Meeting the needs of people living with Alzheimer's and dementia-related disorders.
Alzheimers Disease and Related Disorders Association
The Alzheimer's Association 24/7 Helpline provides reliable information and support to all those who need assistance.
Multiple Hereditary Exostoses Learning System Inc
The MHE Learning System (MHELS) is committed to improving lives of people with MHE through collaboration and shared learning.
ALZHEIMERS FAMILY CAREGIVERS SUPPORT CENTER INC
The Alzheimer's Family Support Center is a non-profit organization serving families dealing with Alzh.
Similar Organisations Worldwide
Organisations in the world similar to Ftd Disorders Registry LLC.
MYOTONIC DYSTROPHY SUPPORT GROUP (uk)
To offer assistance, support and information to those people affected by Myotonic Dystrophy, their carers and families.
RARE AUTOINFLAMMATORY CONDITIONS COMMUNITY - UK (RACC - UK) (uk)
RACC-UK is the only UK registered patient-led Charity supporting Autoinflammatory conditions.
BPD Community Victoria Ltd (au)
BPD Community is a community-based non-profit organization dedicated to providing a voice for all peo.
Interesting nearby
Interesting organisations close by to residence of Ftd Disorders Registry LLC
Meeting the needs of people living with Alzheimer's and dementia-related disorders.
Daughters of Israel is a non-profit skilled nursing facility located in West Orange, NJ.
Similar social media (1663)
Organisations with similar social media impact to Ftd Disorders Registry LLC
136341. Shannon's Comfy Chemo Care Bag Project Inc
Providing support to adults fighting cancer.
136342. Central Christian High School
K–12 Interdenominational Christian School.
136343. Ftd Disorders Registry LLC
The Registry is for FTD diagnosed persons, their caregivers and family members.
136344. Tennessee Valley Interstellar Workshop
The Interstellar Research Group (formerly TVIW, the Tennessee Valley Interstellar Workshop) encourages innovation, research, and sharing of ideas that will one day help enable humanity to reach the stars.
136345. New Horizon Family Health Services Inc
Non-profit community health center located in the Upstate of South Carolina providing medical and dental We close at noon on the last Thursday of every month.
Join us and make a difference for the future!
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Exciting news! 🌟 Statues of Rosa Parks and Helen Keller, two incredible champions of justice and change, will be unveiled at the Alabama Capitol. Their legacies inspire us all to stand up for what's right! #Inspiration #Justice #PositiveChange ❤️✨
Rosa Parks and Helen Keller statues will be unveiled at the Alabama Capitol
WRAL
Like Comment"Exciting news! 🌟 Statues of the incredible Rosa Parks and Helen Keller will be unveiled at the Alabama Capitol, honoring their legacy of justice and inspiration. Let's celebrate those who fought for change! #Inspiration #Justice #PositiveChange"
Rosa Parks and Helen Keller statues will be unveiled at the Alabama Capitol
WPLG
Like Comment