Pituitary Network Association

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Pituitary Network Association - International non-profit organization for patients with pituitary tumors and disorders |

The PNA, founded in 1992, is the world's largest nonprofit patient advocacy organization devoted to early diagnosis, treatment and cure for pituitary diseases.
330530465
EIN
1992
Founded
pituitary.org
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pituitaryorg
Twitter (1989)
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Pituitary Network Association

The Pituitary Network Association (PNA) is an international non-profit organization dedicated to supporting patients with pituitary tumors and disorders, as well as their families, caregivers, and healthcare providers. Established in 1992 by a group of individuals affected by acromegaly, the PNA has since grown to become the world's largest and fastest-growing patient advocacy organization specifically focused on pituitary disorders.

Mission and Objectives

The PNA's mission is to support, promote, and, where possible, fund research aimed at finding cures for pituitary disorders. The organization seeks to disseminate vital information regarding early detection, symptoms, treatments, and available resources to patients, medical professionals, and the public. The PNA uses various methods to achieve its goals, including:

  • Public Awareness Programs: Initiatives aimed at increasing awareness about pituitary disorders and encouraging early diagnosis.

  • Educational Seminars: Providing educational opportunities for patients and healthcare providers to better understand pituitary disorders and their management.

  • Resource Development: Producing comprehensive materials like the "Pituitary Patient Resource Guide," which helps individuals and healthcare providers navigate treatment options and available resources.

Activities and Services

The PNA engages in several activities designed to support its mission:

  • Support Network: The association offers a platform for patients to connect with others facing similar challenges, providing emotional support and shared experiences.

  • Information Dissemination: Regular newsletters and updates keep members informed about the latest research, treatment options, and events relevant to pituitary health.

  • Referral Programs: The PNA assists patients in finding specialized care through a network of healthcare professionals recognized for their expertise in treating pituitary disorders.

Impact and Importance

The PNA plays a critical role in the lives of individuals affected by pituitary disorders by advocating for better understanding and treatment options. With a commitment to reaching every patient, including those who may be undiagnosed or overlooked, the PNA strives to ensure no one suffers in silence and that affected individuals receive the support and care they need.

Through its various programs and initiatives, the Pituitary Network Association continues to be a significant force in the fight against pituitary disorders, working tirelessly to improve outcomes and enhance the quality of life for patients worldwide.

[1] https://livedevelopmentsite.com [2] https://rarediseases.org/organizations/pituitary-network-association/ [3] https://pituitary.org/disorders/ [4] https://www.vumedi.com/channel/pituitary-network-association/tab/videos-208/video/the-role-of-the-pathologist-in-the-treatment-of-the-pituitary-patient/ [5] https://pituitary.org

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