Shwachman Diamond Syndrome Foundation Inc
An organization committed to creating awareness of, and promoting research into a cure for Shwachman Diamond Syndrome. We support patients and families affected by SDS. We strive to raise awareness of SDS. * Advocate for and fund research towards improved treatment and a cure * Raise awareness of SDS in the medical community and general public * Provide educational and emotional support to patients and their families * Link families through the Internet and family conferences * Disseminate current medical information * Support an International Scientific Congress and the North American SDS Patient Registry
ICO
431709945
3000
X (Twitter)
390
Address
Florence
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From Social media
News about Shwachman Diamond Syndrome Foundation Inc from their social media (Facebook and X).
- Shwachman Diamond Syndrome Foundation Inc
- 2025-06-03
Getting ready to board my flight. On my way to the SDS Scientific Congress. (fb) ... more
Liked (47) Commented (3)
- Shwachman Diamond Syndrome Foundation Inc
- 2025-05-20
It is with great sadness that I tell you that Whitner Wise, age 32 years lost her very long and hard fought battle with SDS on May 13th. (fb) ... more
Liked (191) Commented (68)Join us and make a difference for the future!
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