An organization committed to creating awareness of, and promoting research into a cure for Shwachman Diamond Syndrome. We support patients and families affected by SDS. We strive to raise awareness of SDS. * Advocate for and fund research towards improved treatment and a cure * Raise awareness of SDS in the medical community and general public * Provide educational and emotional support to patients and their families * Link families through the Internet and family conferences * Disseminate current medical information * Support an International Scientific Congress and the North American SDS Patient Registry