
Myositis Support and Understanding, Patient-Centered Nonprofit
474570748
Lincoln, DE 19960 USA
understandingmyositis.org
myositissupport
understandingmyositis
3899491
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News

Myositis Support Gets Moving on Clubhouse! TODAY and every Thursday at 1 PM ET / 12 PM CT / 11 AM MT / 10 AM PT. �We welcome all impacted by myositis and their care partners who are interested in muscle preservation by movement and protein intake. This group is for all stages of myositis progression. We will learn, grow and progress together. It is not about competition. IMPOSSIBLE TO FAIL in this group. This weekly Clubhouse Room IS: A space for encouragement and support as we get moving together A space to talk about and create your movement plan A space to talk about your protein intake plan A space to talk about your successes, struggles, and barriers A space to find a support partner A space where NO ONE FAILS! This weekly Clubhouse Room is NOT: An exercise class A set program Medical or mental health advice � See details at: https://understandingmyositis.org/event/myositis-support-gets-moving-on-clubhouse-2-2/2025-05-29/ We know from research that movement with myositis is beneficial. As part of Get Moving, we encourage the use of support partners. This is someone we may choose to engage with for encouragement and support. We can share Our problems, joys and successes with our support partner. Choosing someone from the myositis group means a person who truly understands your situation. Clubhouse is an audio-only app; please click the link provided for more details. #MyositisMovement #myositissupport #myositis #inflammatorymyopathy #muscledisease #proteinintake #movement #exercise #SupportStartsHere (fb)

🎉 Join Us for Myo Night! 🎉 📅Date: May 29th ⏲️Time: 7 PM ET 🔗On Zoom: https://us02web.zoom.us/meeting/register/Srz6Gu3WSfy03jnc6f0p_Q This Myositis Awareness Month, we invite you to Myo Night: Making the Best of My Own Night, themed “My Myo Story Matters: Be the Hero of Your Own Story.” This vibrant event is a celebration of individuals with Myositis and their loved ones, showcasing passions and talents from the comfort of your home! ✨ 💙What to Expect: 🔹Creative Showcases: From poetry to music and arts, share your talents! 🔹Personal Storytelling: Inspire others by sharing your unique journey. 🔹Celebrating Resilience: Highlight the incredible ways you navigate life despite challenges. 💙Why Participate in Myo Night? This event is all about embracing your power and celebrating the hero within you. It encourages you to make the best of your night and create meaningful moments. Whether you’re participating solo or inviting friends and family, it’s your chance to share your story and celebrate your journey. 🦸♀️ Be the hero of your own story! Your story matters, and we can’t wait to inspire others with your courage and creativity! If you'd like to perform or help out during Myo Night, we’d love to have you! 👉Please fill out this separate form to get involved: https://forms.office.com/r/jav4aBGvNJ Let’s close out the month with an unforgettable evening of talent, creativity, and community! We look forward to seeing you there! 🌟 #MyoNight #MyositisAwareness #SupportStartsHere #CelebrateResilience #BeTheHero #CommunityEvent #MyMyoStoryMatters #MSU (fb)

Poslední diskuze
Nearby
4.5
Lincoln
About the organization
- 888, G99, G80, G99 -
Myositis Support Starts Here. At Myositis Support and Understanding MSU for the last 10 years we have been dedicated to making a profound impact on the lives of patients and care partners affected by the rare and complex group of immunemediated muscle diseases known as myositis. This condition can have farreaching effects impacting not only the muscles but also the skin heart lungs and digestive tract often accompanied by significant pain. Our organization offers a wide range of resources designed to support our community.
Diseases, Disorders, Medical Disciplines N.E.C. Specifically Named Diseases Diseases, Disorders, Medical Disciplines N.E.C.