MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION

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MSU, patient-led, all-volunteer nonprofit empowering the #Myositis community. Patient support, education, financial assistance, research. #RareDisease MSU is a virtual, all-volunteer, patient-led 501(c)(3) nonprofit improving the lives of and empowering those fighting the rare autoimmune diseases, myositis, through education, support, financial assistance, patient-centered research, and advocacy. Our mission is to improve the lives of and empower all who are impacted by Myositis through education, support, awareness, advocacy, financial assistance, and access to research.

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Address: 9125 N Old State Rd, LincolnWeb: Sign in to see organisation websiteFacebook: understandingmyositisX (Twitter): myositissupportRevenue: 494568ICO: 474570748

Myositis Support and Understanding, Patient-Centered Nonprofit Myositis Support Starts Here. At Myositis Support and Understanding MSU for the last 10 years we have been dedicated to making a profound impact on the lives of patients and care partners affected by the rare and complex group of immunemediated muscle diseases known as myositis. This condition can have farreaching effects impacting not only the muscles but also the skin heart lungs and digestive tract often accompanied by significant pain. Our organization offers a wide range of resources designed to support our community.

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Ann

1. What strategies can we implement to raise awareness about myositis and its impact on patients' lives within our communities?

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Lena

Thank you MSU for all the incredible support you provide to those battling myositis! Your commitment to education and empowerment truly makes a difference in our lives. πŸ’œ #MyositisSupport

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Rudolph

So grateful for the resources and community you’ve built. Together, we can raise awareness and support each other in our journeys! 🌟 Let's keep spreading the word! #RareDisease #CommunityLove

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MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION

Join us for "From the Heart" support TODAY on Clubhouseβ€”a welcoming space for myositis patients and care partners. If you're feeling alone or just want to connect with those who truly understand, join us to listen or share your experiences with your #myositis family. πŸ’™ Starting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT πŸ‘‰ Don’t forget to join the Myositis Support Club on Clubhouse.

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Simone

2. How can we enhance our financial assistance program to better serve myositis patients facing unexpected challenges?

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MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION

🌟 Join us for Necrotizing Myopathy Support on Zoom TODAY and every last Saturday of the month. 🌟 Starting at 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT, this is a dedicated space for anyone living with necrotizing myopathy (IMNM/NAM). We come together to share laughter and tears in a welcoming, non-recorded environment.

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