SOS EB KIDS CORP

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“Nossa missão é aliviar o sofrimento das crianças brasileiras com epidermólise bolhosa, aumentando sua qualidade de vida e a daqueles com quem convivem". ​“Our mission is to alleviate the suffering of Brazilian kids with EB, increasing their quality of life, whether through material and emotional support or through information and awareness.”

Founded

2015

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5500

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Greenwich

Address: 364 Davis Ave # 2, GreenwichWeb: Sign in to see organisation websiteFacebook: SOSEBKidsVolunteers: 10Revenue: 24761ICO: 474973411

Epidermolysis Bullosa (EB) | SOS EB Kids | United States

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SOS EB KIDS CORP

We wish a happy birthday to our little butterflies born in May. 🎂🎉 #sosebkids #sosebkidsusa #EBawareness #butterflies #fightEB #epidermolysisbullosa #volunteer #pixparaborboletas #ebcommunity.

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Patrick

- What innovative support strategies can NGOs implement to improve the quality of life for children with rare diseases like Epidermolysis Bullosa?

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Ellen

🌟 It's heartbreaking to think about the struggles these beautiful kids face every day. Let's spread the word and contribute whatever we can to help them live a life free from pain! 🙏❤️ #AlleviateSuffering #EBawareness

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Linda

- How can we raise awareness about Epidermolysis Bullosa in schools and communities to foster understanding and compassion towards affected children?

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SOS EB KIDS CORP

To all the extraordinary mothers in our SOS EB Kids family 💐 today we honor the grace with which you love, the courage with which you fight, and the hope you breathe into every day. Your devotion lights the way for children living with EB. Thank you for being their fiercest advocates and our everyday heroes.

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Monica

💖 Every child deserves to feel safe and loved! Let’s come together to support these brave little butterflies and make a difference in their lives! 🦋 #SOSebkids #SupportOurChildren

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