SOS EB KIDS CORP
“Nossa missão é aliviar o sofrimento das crianças brasileiras com epidermólise bolhosa, aumentando sua qualidade de vida e a daqueles com quem convivem". “Our mission is to alleviate the suffering of Brazilian kids with EB, increasing their quality of life, whether through material and emotional support or through information and awareness.”
Founded
2015
5500
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Greenwich
Epidermolysis Bullosa (EB) | SOS EB Kids | United States
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SOS EB KIDS CORP
To all the extraordinary mothers in our SOS EB Kids family 💐 today we honor the grace with which you love, the courage with which you fight, and the hope you breathe into every day. Your devotion lights the way for children living with EB. Thank you for being their fiercest advocates and our everyday heroes.
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Greenwich
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DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF CANADA (DEBRA CANADA) (ca)
DEBRA Canada is a voluntary, registered charitable organization dedicated to providing support for families affected by Epidermolysis Bullosa (EB) and to increasing Canadians' awareness of this challenging disease.
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