SOS EB KIDS CORP
“Nossa missão é aliviar o sofrimento das crianças brasileiras com epidermólise bolhosa, aumentando sua qualidade de vida e a daqueles com quem convivem". “Our mission is to alleviate the suffering of Brazilian kids with EB, increasing their quality of life, whether through material and emotional support or through information and awareness.”
Founded
2015
5500
Web
sosebkids.org
Address
Greenwich
Epidermolysis Bullosa (EB) | SOS EB Kids | United States Home About Support Us Contact SOS EB Kids Brasil More We believe no child should live in pain. Please donate now. A rotina de uma criana com EB The routine of a kid with EB SUPPORT OUR CHILDREN Epidermolysis BullosaEB Epidermolysis bullosa EB is a rare and serious genetic illness noncontagious for which no cure has been found and it is characterized by acute sensitivity in the skin and mucosal membranes. Patients with EB develop blisters and sores in response to the minor types of skin trauma a mere touch upon or pressure to their skin or even just changes in weather.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
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The Dystrophic Epidermolysis Bullosa Research Association of America, Inc.
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National charity supporting people with the painful skin condition, Epidermolysis Bullosa (EB).
DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF CANADA (DEBRA CANADA) (ca)
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From Social media
News about SOS EB KIDS CORP from their social media (Facebook and X).
- SOS EB KIDS CORP
- 2025-05-11
To all the extraordinary mothers in our SOS EB Kids family 💐 today we honor the grace with which you love, the courage with which you fight, and the hope you breathe into every day. (fb) ... more
Liked (1) Commented (0)
- SOS EB KIDS CORP
- 2025-05-07
We wish a happy birthday to our little butterflies born in May. (fb) ... more
Liked (4) Commented (0)Discussions
Odpovědí v diskuzi
1
- What innovative support strategies can NGOs implement to improve the quality of life for children with rare diseases like Epidermolysis Bullosa?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
- How can we raise awareness about Epidermolysis Bullosa in schools and communities to foster understanding and compassion towards affected children?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💖 Every child deserves to feel safe and loved! Let’s come together to support these brave little butterflies and make a difference in their lives! 🦋 #SOSebkids #SupportOurChildren
Brooklyn Simmons
Product Manager
🌟 It's heartbreaking to think about the struggles these beautiful kids face every day. Let's spread the word and contribute whatever we can to help them live a life free from pain! 🙏❤️ #AlleviateSuffering #EBawareness
Brooklyn Simmons
Product Manager
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