PTEN Hamartoma Tumor Syndrome Foundation

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PTEN is a tumor suppressor gene. When mutated at birth a patient is at higher risk for many #cancers and #autism. our mission: treatments for PHTS, patient 1st We are working to accelerate PTEN research while educating the world about PTEN syndromes and supporting our patient community. https://linktr.ee/ptenfoundation The PTEN Hamartoma Tumor Syndrome Foundation was founded to find treatments or therapies for PTEN Syndromes by funding research, providing PHTS education, supporting patients, and by raising awareness. PHTS includes Cowden syndrome (CS), Bannayan-Riley-Ruvalcaba syndrome (BRRS), PTEN-related Proteus syndrome (PS), and Proteus-like syndrome.

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Huntsville

Address: 701 McMillian Way Suite F, HuntsvilleWeb: Sign in to see organisation websiteFacebook: ptenfoundationX (Twitter): ptenfoundationRevenue: 74081ICO: 464279769

PTEN Foundation | PTEN Foundation PTEN Foundation The PTEN Hamartoma Tumor Syndrome Foundation was founded to find treatments or therapies for PTEN Syndromes by funding research providing PHTS education supporting patients and by raising awareness. PHTS includes Cowden syndrome CS BannayanRileyRuvalcaba syndrome BRRS PTENrelated Proteus syndrome PS and Proteuslike syndrome. Download our 2018 Brochure Today. PTEN Hamartoma Tumor Syndrome Foundation We are excited to bring you a patientpowered registry where research is driven by patients and their realworld experience.

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PTEN Hamartoma Tumor Syndrome Foundation

We will never forget the sacrifice they made for out freedom. #MemorialDay @followers.

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Pauline

πŸ’š So proud to support the incredible work being done by the PTEN Foundation! Together, we can raise awareness and bring hope to those affected by PTEN syndromes. #PatientsFirst #PTENAwareness

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Lucy

- What strategies can we implement to raise awareness about PTEN Hamartoma Tumor Syndrome (PHTS) and its related conditions within various communities?

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Catherine

πŸ“’ Let's spread the word about the PTEN Hamartoma Tumor Syndrome Foundation! Every share brings us closer to understanding and treating these conditions. Check out the patient-powered registry and get involved! 🌟 #PHTS #TogetherWeCan

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Linda

- How can patient-powered registries impact research funding and the development of treatments for genetic conditions like PHTS?

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