LIVE RHYSSTRONG FOUNDATION
Our goal is to help the Spinal Muscular Atrophy community's efforts towards research, family support and awareness of the #1 genetic killer of infants. Public Charity to benefit the Spinal Muscular Atrophy community The Live RhysStrong Foundation was founded in memory of little Rhys Anthony Santiago, who was diagnosed with Spinal Muscular Atrophy (SMA) at the tender age of 5 weeks. He grew his angel wings on August 26th, 2013, the day the foundation took flight. Our goal is to increase awareness of SMA, help raise funds for research and help affected families. We are an organization supported completely by volunteers and currently entirely funded by donations.
ICO
463817022
1700
X (Twitter)
159
Address
San Francisco
Live RhysStrong Foundation The Live RhysStrong Foundation was founded in memory of Rhys Anthony Santiago who was diagnosed with Spinal Muscular Atrophy SMA when he was just 5 weeks old. The Live RhysStrong foundation took flight the same day Rhys grew his angel wingsAugust 26 2013. In his 55 days he inspired others to help in any way they can and his inspiration continues to burn bright. We are a 100 volunteer organization currently entirely funded by donations.
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Nerve, Muscle, and Bone Diseases Category
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