Osteopetrosis Society Inc
The OsteoPETrosis Society is dedicated to providing support, education and awareness for all forms of OsteoPETrosis (recessive, intermediate & dominant). The OsteoPETrosis Society was founded in 2013 to assist patients and family members, educate physicians and expand research. The mission of the OsteoPETrosis Society is to provide education and support to patients and caregivers, as well as medical professionals who are dealing with osteopetrosis. In addition, the foundation plans to support research into an osteopetrosis treatment and cure.The OsteoPETrosis Society helps patients, families and caregivers worldwide.
ICO
464384830
520
Web
osteopetrosis.org
Address
Asbury
The OsteoPETrosis Society (OPETS) What is OsteoPETrosis. Osteopetrosis is a rare congenital bone disorder where bones are abnormally dense and brittle. This results froman imbalance between the formation of bone and the breakdown of the bone. There are several types of osteopetrosis of varying severity.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about Osteopetrosis Society Inc from their social media (Facebook and X).
- Osteopetrosis Society Inc
- 2019-08-07
We are trying to set up the 2019 Patients' Meeting for October 25th, 26th in Indianapolis, IN. (fb) ... more
Liked (1) Commented (0)
- Osteopetrosis Society Inc
- 2019-01-19
From the time we just started the first website (www. (fb) ... more
Liked (14) Commented (0)Discussions
Odpovědí v diskuzi
1
1. How can the OsteoPETrosis Society enhance awareness and education about the various forms of Osteopetrosis among healthcare professionals and the general public?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What strategies can be implemented to support families affected by Osteopetrosis in managing the psychological and emotional challenges associated with the disorder?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💙 Thank you, OsteoPETrosis Society, for the incredible work you do! Your dedication to supporting families and raising awareness about this rare condition is truly inspiring. Together, we can bring hope and understanding to those affected by osteopetrosis! 🙌 #OsteoPETrosisAwareness
Brooklyn Simmons
Product Manager
🦴 So grateful for organizations like OPETS that prioritize education and support for those impacted by osteopetrosis. Let's keep spreading the word and advocating for research towards a treatment and cure! 🌐✨ #HopeForOsteopetrosis
Brooklyn Simmons
Product Manager
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I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness
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