Ring14 USA Outreach Inc

Ring14 Syndrome, Rare disease, Rare epilepsy, nonprofit, support, advocacy, research Ring14 USA is nonprofit 501(c)(3) that supports children and families affected by the rare syndromes of the 14th chromosome, such as Ring14 syndrome. At Ring14USA, our main goals are: a. promote and fund research initiatives to find effective treatments and therapies for the children affected by rare genetic disorders of the 14th chromosome b. raise awareness through education, and c. support the children, families, and caregivers in as many ways as possible. Ultimately, our mission is to improve the quality of life for these children and those who care for them by providing solutions, community and hope.

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453754937

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Ring14 USA

Address: EIN for payable organization: 45-3754937, Ring14 USAWeb: ring14usa.orgFacebook: Ring14USAX (Twitter): Ring14USAICO: 453754937

Ring14 USA: Lighting the path to a brighter future for our Ring14 Community Lighting the path to a brighter future for our Ring14 Community Follow Us Clinical Care Neurogenetic Multidisciplinary Clinic Data Collection Program Join our Data Collection Program. Family Contact Registry Please join our contact registry. Welcome to Ring14 USA Our children and their families face tremendous challenges they need effective treatment options better therapies more support and hope. Our goal is to meet these needs.

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RT @LalDennis: Please share‼️Our center for Neurogenetics, is jointly (adult Epilepsy & pediatric neurology) recruiting a neurologist with…. (tw)

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Project description: https://t. co/mrowJgDvXY. (tw) ... more

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1. What innovative strategies can NGOs like Ring14 USA implement to raise awareness and support for families affected by rare syndromes, specifically those related to the 14th chromosome?

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Brooklyn Simmons
Brooklyn Simmons

2 days ago

Odpovědí v diskuzi

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2. How can the Ring14 USA community leverage data collection programs to improve research outcomes and access to effective treatments for children with Ring14 Syndrome?

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Brooklyn Simmons
Brooklyn Simmons

2 days ago

}
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Together, we can make a real impact in communities around the world. Help us bring hope and support.

Thank you, Ring14 USA, for shining a light on such an important cause! Your commitment to supporting families affected by Ring14 Syndrome gives hope to so many. 💖 #TogetherForRing14

Brooklyn Simmons
Brooklyn Simmons

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I’m inspired by the work being done to uplift our Ring14 community! Let’s continue to spread awareness and support those in need. Every little bit helps! 🌟 #HopeForRing14

Brooklyn Simmons
Brooklyn Simmons

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