Ring14 USA Outreach Inc

Ring14 USA: Lighting the path to a brighter future for our Ring14 Community

Ring14 Syndrome, Rare disease, Rare epilepsy, nonprofit, support, advocacy, research Ring14 USA is nonprofit 501(c)(3) that supports children and families affected by the rare syndromes of the 14th chromosome, such as Ring14 syndrome. At Ring14USA, our main goals are: a. promote and fund research initiatives to find effective treatments and therapies for the children affected by rare genetic disorders of the 14th chromosome b. raise awareness through education, and c. support the children, families, and caregivers in as many ways as possible. Ultimately, our mission is to improve the quality of life for these children and those who care for them by providing solutions, community and hope.
453754937
EIN
Ring14 USA
Address
ring14usa.org
Web
Ring14USA
Twitter (301)
Ring14USA
Facebook (559)

News

Poslední diskuze

Nearby

Contact
Ring14 USA Outreach Inc logo
Ring14 USA Outreach Inc
+ Follow
4.5
Reviews
Ring14 USA
Place
About the organization

- 765, G54, E01, H20 -

Lighting the path to a brighter future for our Ring14 Community Follow Us Clinical Care Neurogenetic Multidisciplinary Clinic Data Collection Program Join our Data Collection Program. Family Contact Registry Please join our contact registry. Welcome to Ring14 USA Our children and their families face tremendous challenges they need effective treatment options better therapies more support and hope. Our goal is to meet these needs.

Epilepsy Alliance/Advocacy Organizations Birth Defects, Genetic Diseases Research
23 Vacancy More Detail