Ring14 USA Outreach Inc

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Ring14 Syndrome, Rare disease, Rare epilepsy, nonprofit, support, advocacy, research Ring14 USA is nonprofit 501(c)(3) that supports children and families affected by the rare syndromes of the 14th chromosome, such as Ring14 syndrome. At Ring14USA, our main goals are: a. promote and fund research initiatives to find effective treatments and therapies for the children affected by rare genetic disorders of the 14th chromosome b. raise awareness through education, and c. support the children, families, and caregivers in as many ways as possible. Ultimately, our mission is to improve the quality of life for these children and those who care for them by providing solutions, community and hope.

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Ring14 USA

Address: EIN for payable organization: 45-3754937, Ring14 USAWeb: Sign in to see organisation websiteFacebook: Ring14USAX (Twitter): Ring14USAICO: 453754937

Ring14 USA: Lighting the path to a brighter future for our Ring14 Community Lighting the path to a brighter future for our Ring14 Community Follow Us Clinical Care Neurogenetic Multidisciplinary Clinic Data Collection Program Join our Data Collection Program. Family Contact Registry Please join our contact registry. Welcome to Ring14 USA Our children and their families face tremendous challenges they need effective treatment options better therapies more support and hope. Our goal is to meet these needs.

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Matthew

I’m inspired by the work being done to uplift our Ring14 community! Let’s continue to spread awareness and support those in need. Every little bit helps! 🌟 #HopeForRing14

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John

2. How can the Ring14 USA community leverage data collection programs to improve research outcomes and access to effective treatments for children with Ring14 Syndrome?

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Ring14 USA Outreach Inc

Having a child with disabilities changes your perspective on life and what we think it should be. Different is simply different, and we should embrace our differences. Being different is what makes us unique.

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Michael

Thank you, Ring14 USA, for shining a light on such an important cause! Your commitment to supporting families affected by Ring14 Syndrome gives hope to so many. 💖 #TogetherForRing14

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Brenda

1. What innovative strategies can NGOs like Ring14 USA implement to raise awareness and support for families affected by rare syndromes, specifically those related to the 14th chromosome?

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Epilepsy Category

Organisations with similar rank to Ring14 USA Outreach Inc in category Epilepsy

65. Epilepsy Foundation of Southeast Wisconsin

We provide help and hope to individuals and families impacted by epilepsy.

66. Ring14 USA Outreach Inc

Ring14 USA is nonprofit 501(c)(3) that supports children and families affected by the rare syndromes of the 14th chromosome, such as Ring14 syndrome.

67. Fearless Movement

Fearless Movement is a 501 (c)(3) Epilepsy and Mental Health advocacy non-profit organization.

68. Adcy5.org

Patients with a variant of their ADCY5 gene will now find each other here.

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2552. Ring14 USA Outreach Inc

Ring14 USA is nonprofit 501(c)(3) that supports children and families affected by the rare syndromes of the 14th chromosome, such as Ring14 syndrome.

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Birth Defects, Genetic Diseases Research Category

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The Canavan Research Foundation is dedicated to eradicating genetic brain diseases, including Canavan, Alzheimer's, Parkinson's, and MS.

55. Ring14 USA Outreach Inc

Ring14 USA is nonprofit 501(c)(3) that supports children and families affected by the rare syndromes of the 14th chromosome, such as Ring14 syndrome.

56. SNYDER-ROBINSON FOUNDATION

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Ring14 USA

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