
Ring14 USA Outreach Inc
Ring14 Syndrome, Rare disease, Rare epilepsy, nonprofit, support, advocacy, research Ring14 USA is nonprofit 501(c)(3) that supports children and families affected by the rare syndromes of the 14th chromosome, such as Ring14 syndrome. At Ring14USA, our main goals are: a. promote and fund research initiatives to find effective treatments and therapies for the children affected by rare genetic disorders of the 14th chromosome b. raise awareness through education, and c. support the children, families, and caregivers in as many ways as possible. Ultimately, our mission is to improve the quality of life for these children and those who care for them by providing solutions, community and hope.

ICO
453754937
559
X (Twitter)
301
Address
Ring14 USA
Ring14 USA: Lighting the path to a brighter future for our Ring14 Community Lighting the path to a brighter future for our Ring14 Community Follow Us Clinical Care Neurogenetic Multidisciplinary Clinic Data Collection Program Join our Data Collection Program. Family Contact Registry Please join our contact registry. Welcome to Ring14 USA Our children and their families face tremendous challenges they need effective treatment options better therapies more support and hope. Our goal is to meet these needs.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Similar organisations

Welcome to the Official fan page of the Cohen Syndrome Association ®.

Our goal is to support individuals and families with chromosome 17q12 deletion syndrome or 17q12 duplication syndrome while raising awareness, providing up to date information, and seeking research.

A 501c3 that is dedicated to finding treatments and a cure for CTNNB1 Syndrome while raising awareness and connecting families.
Similar Organisations Worldwide

THE CHILDREN'S RARE DISORDERS FUND LTD (uk)
The Children's Rare Disorders Fund is dedicated to curing childhood rare genetic disorders.

RING20 RESEARCH AND SUPPORT UK CIO (uk)
Supporting families, individuals and professionals who are affected by or who come into contact with Ring chromosome 20 syndrome - r(20).

CS TTD XRCC4 DNA disorders www.

CANADIAN ORGANIZATION FOR RARE DISORDERS (CORD) (ca)
CORD is Canada's national network for organizations representing all those with rare disorders.

RARE CHROMOSOME DISORDER SUPPORT GROUP (uk)
Support, Information and networking to help those with rare chromosome & gene disorders and their families.
More from Ring14 USA
More from Ring14 USASimilar social media (860)

Roundup Memorial Hospital Association
Roundup Memorial Healthcare is a 25-bed critical access hospital with an integrated provider clinic serving Musselshell, Golden Valley, Fergus, and Yellowstone Counties.

An organization that provides services to Clergy and Christian entities offering collection, refurbishing and redistribution services.

NATIONAL AIR FILTRATION ASSOCIATION
The National Air Filtration Association (NAFA) is a non-profit trade association.
Category

We're one church in three locations seeking to glorify God by winning people to Jesus Christ and equipping them to be more faithful disciples.

Loving Paws Animal Center, Inc.
LPAC is dedicated to “at-risk” homeless felines.
From Social media
News about Ring14 USA Outreach Inc from their social media (Facebook and X).
- Ring14 USA Outreach Inc
- 2024-01-13
RT @LalDennis: Please share‼️Our center for Neurogenetics, is jointly (adult Epilepsy & pediatric neurology) recruiting a neurologist with…. (tw)
Liked (0) Commented (0)- Ring14 USA Outreach Inc
- 2024-01-11
Project description: https://t. co/mrowJgDvXY. (tw) ... more
Liked (1) Commented (0)Discussions
Odpovědí v diskuzi
1
1. What innovative strategies can NGOs like Ring14 USA implement to raise awareness and support for families affected by rare syndromes, specifically those related to the 14th chromosome?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can the Ring14 USA community leverage data collection programs to improve research outcomes and access to effective treatments for children with Ring14 Syndrome?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Thank you, Ring14 USA, for shining a light on such an important cause! Your commitment to supporting families affected by Ring14 Syndrome gives hope to so many. 💖 #TogetherForRing14

Brooklyn Simmons
Product Manager
I’m inspired by the work being done to uplift our Ring14 community! Let’s continue to spread awareness and support those in need. Every little bit helps! 🌟 #HopeForRing14

Brooklyn Simmons
Product Manager
Share your comment / review / opinion
Kendall Monroe
Product Manager
Join us and make a difference for the future!
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with Google