ICO
462762646
Web
raretrait.com
Address
Belle Chasse
Home We need your help paying for the lifesaving drug . Aspartylglucosaminuria AGU is a rare and fatal disease that currently has no treatment. Rare Trait Hope Fund is dedicated to find a treatment for this disease but without your help the kids with AGU are destined to die. Total cost of drug manufacturing and testing is US 5824600.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Similar organisations
Assisting those with undiagnosed or rare disorders at any age and any stage.
Where Theres A Will Theres A Cure
Where There's a Will There's a Cure is an all volunteer not for profit 501(c)(3) charitable organization and its purpose is to raise funds for research to find a cure for Myotubular Myopathy (MTM).
Brian J Kelley Foundation for Hope Inc
Through Brian’s Hope, a 501(c)(3) charitable foundation, we look forward to a day when no child will experience the devastation of adrenoleukodystrophy (ALD).
Inspire Hope Foundation for Urea Cycle Disorders Inc
We are excited to introduce the Inspire Hope Foundation for Urea Cycle Disorders, Inc.
Similar Organisations Worldwide
Infantile Neuro Axonal Dystrophy is a rare inherited disorder.
Flicker of Hope Foundation Ltd (au)
The Flicker of Hope Foundation raises funds for Neurofibromatosis medical research.
THE CHILDREN'S RARE DISORDERS FUND LTD (uk)
The Children's Rare Disorders Fund is dedicated to curing childhood rare genetic disorders.
More from Belle Chasse
Plaquemines Community Care Centers Foundation Inc
To improve the well-being of the residents of Plaquemines Parish, “One child, one family at a time.
Youth Conference Ministries Inc
Youth Conference Ministries, Inc.
Plaquemine Parish Fair & Orange Festival
December 7th & 8th (Carnival rides only December 6th): Historic Fort Jackson, Buras, LA.
Category
DalšíDiscussions
Odpovědí v diskuzi
1
What are some effective fundraising strategies that NGOs can use to raise awareness and financial support for rare diseases like Aspartylglucosaminuria AGU?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can the community better support families affected by rare diseases, and what role should NGOs play in providing resources and assistance?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Every little bit helps! Let’s rally together and raise the funds needed to give these kids a fighting chance! 💪❤️ #HopeForAGU
Brooklyn Simmons
Product Manager
I can’t imagine what these families are going through. Let’s come together to support the Rare Trait Hope Fund and make a real difference in their lives! 🌟🙏 #CureAGU
Brooklyn Simmons
Product Manager
Share your comment / review / opinion
Kendall Monroe
Product Manager
Join us and make a difference for the future!
I found my favorite volunteer opportunity thanks to Eduo!
Brooklyn Simmons
Product Manager
Eduo.org makes finding trustworthy nonprofits refreshingly simple.
Kendall Monroe
Product Manager
Eduo is where compassion meets clarity.
Madison Carter
Product Manager
As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.
Riley Bennett
Product Manager
I found my favorite volunteer opportunity thanks to Eduo!
Sydney Parker
Product Manager
Finally, a clear and organized way to explore local and global charities.
Jordan Blake
Product Manager
A brilliant resource for anyone who wants to do good more effectively.
Brooklyn Simmons
Product Manager
Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!
Kendall Monroe
Product Manager
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with Google