Rare Trait Hope Fund

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Rare trait Hope Fund facilitates research and provides funding for the development of treatments for a rare disease called Aspartylglucosaminuria (AGU) in hopes to save lives of AGU kids and adults. Currently, the treatment finished pre-clinical phase.

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462762646

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Belle Chasse

Address: 406 Schlief Dr, Belle ChasseWeb: Sign in to see organisation websiteRevenue: 73805ICO: 462762646

Home We need your help paying for the lifesaving drug . Aspartylglucosaminuria AGU is a rare and fatal disease that currently has no treatment. Rare Trait Hope Fund is dedicated to find a treatment for this disease but without your help the kids with AGU are destined to die. Total cost of drug manufacturing and testing is US 5824600.

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Katherine

How can the community better support families affected by rare diseases, and what role should NGOs play in providing resources and assistance?

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Michelle

What are some effective fundraising strategies that NGOs can use to raise awareness and financial support for rare diseases like Aspartylglucosaminuria AGU?

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Peter

Every little bit helps! Let’s rally together and raise the funds needed to give these kids a fighting chance! 💪❤️ #HopeForAGU

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Martin

I can’t imagine what these families are going through. Let’s come together to support the Rare Trait Hope Fund and make a real difference in their lives! 🌟🙏 #CureAGU

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Belle Chasse

Organisations from Rare Trait Hope Fund

1. Plaquemine Parish Fair & Orange Festival

December 7th & 8th (Carnival rides only December 6th): Historic Fort Jackson, Buras, LA.

2. Woodlands Conservancy

Woodlands Conservancy is a nonprofit land trust organized in 2001 to preserve and restore ecologically significant lands in Louisiana.

3. Youth Conference Ministries Inc

Youth Conference Ministries, Inc.

4. Plaquemines Community Care Centers Foundation Inc

To improve the well-being of the residents of Plaquemines Parish, “One child, one family at a time.

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