HETEROTAXY CONNECTION
A nonprofit organization dedicated to the support, education, and empowerment of the heterotaxy community. Connecting families with resources and each other. Heterotaxy Connection is a nonprofit supporting individuals and families affected by heterotaxy syndrome. We provide education, advocacy, and community connections to improve awareness, care, and outcomes To support, educate, and empower families affected by Heterotaxy Syndrome.We have 6 regions in the United States as well as support groups in Canada, the United Kingdom, and Australia/New Zealand.
ICO
465498856
3300
X (Twitter)
204
Address
Eagle Mountain
HOME | Heterotaxy Connection support educate empower HOME ABOUT HETEROTAXY ABOUT US FAMILIESCAREGIVERS RESEARCHERSPROFESSIONALS EVENTS DONATE SHOP More Click connectunder the Families Caregivers tab to find out more about our Facebook groups where families affected by heterotaxy can gather to ask questions share knowledge and support each other. Heterotaxy Connection is thrilled to have been chosen as one of the recipients of the Rare as One grant through the Chan Zuckerberg Foundation. Learn more by checking out our press release. Full conference recordings from September39s Facing Heterotaxy Together virtual scientific conference are now available to view and share with your medical teams.
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From Social media
News about HETEROTAXY CONNECTION from their social media (Facebook and X).
- HETEROTAXY CONNECTION
- 2025-06-16
https://t. co/6nWmNhYEnJ. . . . . . . . (tw) ... more
Liked (0) Commented (0)
- HETEROTAXY CONNECTION
- 2025-06-16
ATTENTION Heterotaxy Community. Now is the time to make a difference. (tw) ... more
Liked (0) Commented (1)Discussions
Odpovědí v diskuzi
1
- What are the most effective ways to raise awareness about heterotaxy syndrome in the general public and medical community?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
- How can we enhance support systems for families affected by heterotaxy beyond social media platforms?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for organizations like Heterotaxy Connection that provide vital resources and support for families dealing with heterotaxy syndrome. Together, we can raise awareness and make a difference! 💙🌍
Brooklyn Simmons
Product Manager
Congratulations on being selected for the Rare as One grant! This is such an important step towards advancing support and education for the heterotaxy community. Keep up the amazing work! 🌟🙌
Brooklyn Simmons
Product Manager
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