CORTICAL MALFORMATION AND CEPHALIC DISORDER FOUNDATION INC
Nonprofit dedicated to improving the lives of those diagnosed with a cortical malformation or cephalic disorder. The CMCD Foundation is a non-profit organization dedicated to improving the quality of life of patients and their families who have been affected by the diagnosis of a cortical malformation or a cephalic disorder. The mission of the Cortical Malformation & Cephalic Disorder (CMCD) Foundation is to improve the quality of life of patients and their families who have been affected by a cortical malformation or cephalic disorder, and related clinical manifestations including epilepsy, feeding difficulties, developmental disabilities, and other medical complications. We will accomplish this mission by: - providing support to patients and their families through advocacy and outreach - advocating for those with special needs to make sure they have equal opportunities within their communities - implementing educational programs for the medical community and general public - supporting neuroscience research that leads to advanced understanding of these congenital conditions
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Saratoga Spgs
Cortical Malformation & Cephalic Disorder Foundation Cortical Malformation Cephalic Disorder Foundation About Us Mission Board of Directors Contact Us Our Story About Us The Cortical Malformation Cephalic Disorder CMCD Foundation founded in 2014 is a nonprofit organization dedicated to improving the quality of life of patients and their families who have been affected by the diagnosis of a cortical malformation or a cephalic disorder. The CMCD Foundation was founded by a mother of child diagnosed with both of these conditions after she found herself with very little information and support after receiving her sons diagnoses. Cortical malformations and cephalic disorders are both rare neurological conditions that are often caused by a disturbance that occurs early in the development of the fetal nervous system. Given the rarity of these disorders families who are faced with one of these diagnoses often have limited information and support even within the medical community.
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CORTICAL MALFORMATION AND CEPHALIC DISORDER FOUNDATION INC
The CMCD Foundation is excited to introduce Mackenzie Coston. She is a first-year master’s candidate at the University of Pennsylvania Masters of Science in Genetic Counseling Program. She chose the CMCD Foundation for her Advocacy Internship, and over the next couple of weeks, we will be rolling out the genetic testing resources that she has created.
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CORTICAL MALFORMATION AND CEPHALIC DISORDER FOUNDATION INC
What does Rare Disease Day mean to me. For me, it is a day to acknowledge the rollercaster of a journey my life has been over the past almost 11 years, as I am a rare disease mom, and advocate. My journey through motherhood has been a long one, beginning long before my son was born.
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Brain Disorders Category
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