
Team Sanfillipo — Parents united to find a cure or treatments
Twitter account for Team Sanfilippo. We are a group of parents united to find new treatments and cure for MPS III Sanfilippo Syndome. To find potential therapies that can go to clinical trials in the very near future . We support Biotech, Pharma and researchers with potential therapies that are underfunded and to provide assistance with connecting families and companies that need information for ongoing clinical / trial work . The objective is to find treatments for all ages and ultimately a cure.
We are dedicated to getting treatment to the children that span from quality of life to hopefully one day a cure !
464027239
EIN
2010
Founded
WILMINGTON, DE 19810 USA
Address
teamsanfilippo.org
Web
teamsanfilippo
Twitter (729)
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About the organization
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What is Sanfilippo Syndrome. How You Can Help Team Sanfilippo Help Our Kids Follow Us Fundraising Become an Affiliate What39s Happening SAVE THE DATES . Sanfilippo Smash 8 October 56 Otsego County Fairgrounds in Morris NY SanfilippoFest V October 1820 Hershey Park Lodge . Read More PRESS RELEASES January 17 2020 Today we are excited to announce that Kathy Nay will be joining our Team as a Board Member Kathy has been a longtime supporter of TSF and has been helping in many aspects of the .
Diseases of Specific Organs Nerve, Muscle, and Bone Research
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