Tsf Incorporated
Twitter account for Team Sanfilippo. We are a group of parents united to find new treatments and cure for MPS III Sanfilippo Syndome. To find potential therapies that can go to clinical trials in the very near future . We support Biotech, Pharma and researchers with potential therapies that are underfunded and to provide assistance with connecting families and companies that need information for ongoing clinical / trial work . The objective is to find treatments for all ages and ultimately a cure. We are dedicated to getting treatment to the children that span from quality of life to hopefully one day a cure !
Founded
2010
X (Twitter)
729
Address
WILMINGTON
Team Sanfillipo — Parents united to find a cure or treatments What is Sanfilippo Syndrome. How You Can Help Team Sanfilippo Help Our Kids Follow Us Fundraising Become an Affiliate What39s Happening SAVE THE DATES . Sanfilippo Smash 8 October 56 Otsego County Fairgrounds in Morris NY SanfilippoFest V October 1820 Hershey Park Lodge . Read More PRESS RELEASES January 17 2020 Today we are excited to announce that Kathy Nay will be joining our Team as a Board Member Kathy has been a longtime supporter of TSF and has been helping in many aspects of the .
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Discussions
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- What innovative fundraising strategies have other NGOs successfully implemented to support research efforts in rare diseases like Sanfilippo Syndrome?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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- How can we engage and educate more people about Sanfilippo Syndrome and its impact on families to increase awareness and support for our organization?
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Brooklyn Simmons
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Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💙 Amazing work, Team Sanfilippo! Every effort counts, and I’m inspired by the dedication of all the parents on this journey to find a cure. Let’s keep pushing forward for our kids! 💪✨
Brooklyn Simmons
Product Manager
🎉 Excited for Sanfilippo Smash and SanfilippoFest! Can't wait to join in and support such a meaningful cause. Together, we can make a difference! 🥳❤️
Brooklyn Simmons
Product Manager
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