SNYDER-ROBINSON FOUNDATION
The Snyder-Robinson Foundation
The Snyder-Robinson Foundation is a nonprofit organization with a mission to advance research relating to Snyder-Robinson Syndrome (SRS) & related disorders The Snyder-Robinson Foundation is a tax-exempt organization formed to advance medical and scientific
465662435
EIN
Mclean, VA 22101 USA
Address
snyder-robinson.org
Web
snyder_robinson
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SnyderRobinsonFoundation
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About the organization
- 703, H20, H48, H50 -
Welcome to the SnyderRobinson Foundation Research Update Currently there is no approved treatment that targets the biochemical imbalance in polyamines in individuals with SnyderRobinson Syndrome SRS. Patients rely on supportive care to address the symptoms of SRS. Researchers have identified an existing drug eflornithine also known as difluoromethylornithine or DFMO that may improve the polyamine imbalance in individuals with SRS. Currently eflornithine is used to treat children with BachmannBupp syndrome another disorder affecting the polyamine pathway.
Birth Defects, Genetic Diseases Research Brain Disorders Nerve, Muscle, and Bone Research
23 Vacancy
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