SNYDER-ROBINSON FOUNDATION
The Snyder-Robinson Foundation is a nonprofit organization with a mission to advance research relating to Snyder-Robinson Syndrome (SRS) & related disorders The Snyder-Robinson Foundation is a tax-exempt organization formed to advance medical and scientific The mission of The Snyder-Robinson Foundation is to find treatments or a cure for Snyder-Robinson Syndrome (SRS), and for related charitable, educational, and scientific purposes.
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Mclean
The Snyder-Robinson Foundation Welcome to the SnyderRobinson Foundation Research Update Currently there is no approved treatment that targets the biochemical imbalance in polyamines in individuals with SnyderRobinson Syndrome SRS. Patients rely on supportive care to address the symptoms of SRS. Researchers have identified an existing drug eflornithine also known as difluoromethylornithine or DFMO that may improve the polyamine imbalance in individuals with SRS. Currently eflornithine is used to treat children with BachmannBupp syndrome another disorder affecting the polyamine pathway.
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