Ehrick Garions Act

Ehrick Garion's Act is a medical advocacy 501 (c)(3) non-profit organization and awareness act, formed to educate, advocate and legislate changes in the medical community, the government and the public about Chiari Malformation. We are a strictly volunteer-based non-profit organization and 100% of our profits go back into the community. We are focused on the different impacts of having this type of incurable neurological condition. For infants and children, there is a need to have pediatricians well versed in Chiari Malformation. Research has shown that the malformation may be a cause of SIDS (Sudden Infant Death Syndrome) and fatal sleep apnea. For adults, there is also a need to educate government social service agencies on how crippling this invisible condition can become, and to change the methods used to identify Chiari Malformation by radiologists and doctors from arbitrary standards developed last century to national standards based on current sound medical research.