Our team is with the @chanzuckerberginitiative this week for the #RareAsOne meeting, where over 80 rare disease organizations come together to collaborate, share ideas, and accelerate progress in preventing, diagnosing, and treating the diseases that impact our communities. This meeting is essential to helping us #preventNEC and we could not be more thankful for the incredible and inspiring group of people that make up the #RareAsOne community! (fb)

🦖 Rexercise for a world without necrotizing enterocolitis (NEC)💛 On #NECawareness Day, Lyddia and Glenn hosted their annual Rexercise event in honor of their son, Rex, who tragically passed away from NEC. In partnership with @energyxfitness, Lyddia and Glenn raised awareness and funds for the NEC Society by inspiring their local community to join them for a day of yoga, cycling, wearing 🦖Rexercise merch, posting on social media, and more - all benefitting the NEC Society’s advancement of research, education, and advocacy! Glenn, @glenngiggles, also raised awareness while spreading joy through a night of comedy for good. Lyddia shared that advocacy is a huge part of what parenting after tragic loss looks like for her and Glenn. We are so grateful to them for their commitment to building a world without NEC for babies like Rex 🩵 #preventNEC (fb)