The Courageous Parents Network Inc.

The Courageous Parents Network Inc. is a 501(c)(3) national nonprofit organization in the United States dedicated to supporting families of children with serious illnesses. Founded in 2014 by Blyth Taylor Lord, the organization aims to empower, support, and equip families and healthcare providers caring for these children.

Mission

The mission of The Courageous Parents Network is built on the founder's personal experience with her daughter, who passed away from infantile Tay-Sachs, a rare genetic disorder. The organization provides resources to help families navigate the challenges of caring for a seriously ill child, focusing on issues such as psychological and emotional well-being, informed decision-making, and grief management.

Programs

The Courageous Parents Network offers a range of programs:

• Education: Offers easily accessible, expertly vetted information and tools through videos, podcasts, guides, and reports. These resources help families address psychological and emotional issues and make informed decisions about their child's care.

• Community: Connects families with others who have experienced similar situations, minimizing isolation and promoting shared experiences. This includes private discussion forums, opportunities for contributing to the organization's blog, and monthly Zoom meetings.

• Advocacy: Works to increase awareness and demand for pediatric palliative care, enhancing the quality of life for both the child and the family. The organization engages with healthcare leaders and policymakers to advance the pediatric palliative care movement.

Resources

One of the core resources of the organization is a library of over 600 videos, featuring families and healthcare providers discussing their experiences with serious childhood illnesses. Topics include navigating diagnoses, clinical trials, and managing the needs of siblings. Additionally, the organization hosts "Pathways," which are structured learning sessions designed to help families through critical periods.

Staff and Board

The organization is led by Founder and Executive Director Blyth Taylor Lord, who has extensive experience in television production, distance learning, and pediatric palliative care advocacy. Other key members include Jennifer Siedman, Director of Community Engagement, and a diverse board of directors that includes healthcare professionals and advocates.

Impact

The Courageous Parents Network has become a vital resource for families dealing with the complexities of severe childhood illnesses. It provides a platform where parents can share their stories and gain support from others who understand their challenges, while also advocating for better care options such as pediatric palliative care.

The organization serves not only families but also healthcare professionals by offering training materials and promoting empathy in the medical community through its resources.