
HUNTINGTONS DISEASE YOUTH ORGANIZATION
An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world. We're an international non-profit organisation supporting, educating and empowering young people, up to 35 years, impacted by Huntington’s Disease around the world. Provide support for young people (35 and under) around the world impacted by Huntington's disease (HD).We work with young people all over the world. Our website is translated into 15 languages to make education about Huntington's Disease easy to understand. HD is a scary disease. It's our goal that when young people learn about HD in their lives www.HDYO.org helps create a positive first impression about the disease. We hold in-person youth camps in North America, Europe and Australia that brings together young people to gain support, education, connection and have lots of fun. These camps are fully funded through partnerships and have positively impacted the lives of hundreds of young people worldwide. We have 3 employees and a host of volunteers worldwide.

Founded
2013
13000
X (Twitter)
2445
Address
Livonia
Huntington's Disease Youth Organization Support HDYO HDYO is the only organization who focus solely on supporting young people impacted by HD around the world. Will you help us. Recent Updates Our content is split into different groups. Choose the group that best describes your needs for more information on HD.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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News about HUNTINGTONS DISEASE YOUTH ORGANIZATION from their social media (Facebook and X).
- HUNTINGTONS DISEASE YOUTH ORGANIZATION
- 2025-06-11
RT @HDReach: We attended the @hdyofeed Congress in March. (tw) ... more
Liked (0) Commented (0)- HUNTINGTONS DISEASE YOUTH ORGANIZATION
- 2025-05-21
It’s my life, my choice. 💬🧬 Today, some of our ambassadors speak honestly about the pressure, the judgment, and the strength it takes to make your own choices in the face of HD 💪❤️ #Huntingtonsdisease #HDYO #HDYOBehindTheMask. (fb) ... more
Liked (18) Commented (0)Discussions
Odpovědí v diskuzi
1
1. How can we increase awareness and understanding of Huntington's Disease among young people who may be affected but are unaware of it?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What innovative support strategies can be implemented to better empower youth impacted by Huntington's Disease in their daily lives?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💜 Thank you HDYO for all the incredible work you do! It's amazing to see how you empower and support young people facing Huntington's Disease. Together, we can make a difference! #SupportHDYO

Brooklyn Simmons
Product Manager
🌍 So proud to be part of an organization that brings hope and community to those affected by Huntington's Disease! Let’s keep spreading awareness and supporting each other. #HuntingtonsDisease #HDYO

Brooklyn Simmons
Product Manager
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Kendall Monroe
Product Manager
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