Pitt Hopkins Research Foundation

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Dedicated to Pitt Hopkins research & treatment, and to creating a network of friends & supporters of those with PTHS. Join us on FB @ https://t.co/f6wLuyrtXx. This is the official Facebook Page of the Pitt Hopkins Research Foundation. Please visit our website, and consider donating at: http://pitthopkins.org PITT HOPKINS RESEARCH FOUNDATION'S MISSION IS TO SUPPORT RESEARCH DEDICATED TO FINDING A TREATMENT AND AN EVENTUAL CURE OF PITT HOPKINS SYNDROME AND OTHER SIMILAR DISORDERS. THE ORGANIZATION'S MISSION IS TO ALSO SUPPORT THE PITT HOPKINS COMMUNITY WITH RESOURCE RECOMMENDATIONS, PARENTAL SUPPORT AND THE LATEST MEDICAL INFORMATION.

Founded

2012

Facebook

6000

X (Twitter)

717

Address

Plymouth

Address: PO Box 6257, PlymouthWeb: Sign in to see organisation websiteFacebook: pitthopkins.orgX (Twitter): PittHopkinsEmployees: 1Volunteers: 9Revenue: 397950ICO: 460770142

Home - Pitt Hopkins Research Foundation Dont just HOPE for miracles FIGHT FOR THEM Dont just HOPE for miracles FIGHT FOR THEM FROM LAB TO CLINIC WERE DRIVING TRIALS FORWARD WITH UNWAVERING PASSION. Our Mission The mission of the Pitt Hopkins Research Foundation PHRF is to support research dedicated to finding a treatment and an eventual cure for Pitt Hopkins Syndrome and other similar disorders. The PHRF is also dedicated to supporting the Pitt Hopkins community with resource recommendations parental support and the latest medical information. Our Mission The mission of the Pitt Hopkins Research Foundation PHRF is to support research dedicated to finding a treatment and an eventual cure for Pitt Hopkins Syndrome and other similar disorders.

News & Updates XX

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News about from their social media (Facebook and X).

Kira

Incredible work being done by the Pitt Hopkins Research Foundation! So proud to support such a vital cause. Every little bit helps in the fight for miracles! 🧬✨

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Lucy

How can we better support families newly diagnosed with Pitt Hopkins Syndrome to ensure they feel empowered and connected to available resources?

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Faith

Love this initiative! Together we can make a difference for those affected by Pitt Hopkins Syndrome. 💙 Let's keep fighting for a cure!

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Pitt Hopkins Research Foundation

The Research Rundown: 10 Key Updates You Need to Know 1. Three Clinical Trials and Counting Since 2023, we’ve launched three clinical trials: one with Neuren Pharmaceuticals targeting BDNF enhancement, and two at Arizona State University exploring Microbiota Transfer Therapy. 2.

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Diana

What are some effective strategies for raising awareness and funds for rare diseases like Pitt Hopkins Syndrome in local communities?

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Fund Raising and/or Fund Distribution Category

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